Staying away from home with late stage MND is an absolute mission. Specialist accommodation is massively rare so I stopped looking for accommodation that has everything I need a long time ago. Instead I find places that have enough space and hire or travel with all my equipment. To give you an idea my packing list for this trip had 76 items on it...
Of course I can't physically help to pack any of that, and trying to control too much of the process is a very fast path to massive frustration. However its not easy to let go when so much of that equipment is essential to keeping me alive and cared for, I need to have a lot of trust in my care team and thankfully I do.
Then of course there are the people who will physically push me around the London Marathon. Taking responsibility for my care at the same time. Not only do they have to be physically fit enough to comfortably run 26.2 miles, they have to monitor me and provide any interventions I may need. Distance running is traditionally a solo pursuit, taking on responsibility for me as well is a heroic effort in my view.
Then there are the people who organise the administrative side, the logistics and the publicity. Making sure all my equipment is where it needs to be, everyone has their accreditation, and that we raise some cash for research and care too.
In total that covers around 12 people. The vast majority of whom are unpaid. Those who are paid receive a fraction of what they deserve (that's a whole other blog post) and go above and beyond to help me a
ttempt these ridiculous challenges. Those 12 people are just the tip of the iceberg, my family, friends, trustees and of course all the amazing people who follow and support the charity all have my heartfelt gratitude. I don't really know how I've created this incredible support, or why so many people are willing to give up their time and energy to support me and the charity. It's beyond anything I hoped for or anticipated when we started Stand Against MND and I'm humbled by it.
It gives me the will to carry on, a purpose. Helps me maintain a positive attitude whilst being assaulted by the most brutal disease. Thank you. Every single one of you.
If you feel inspired to help us fund more vital research, you can donate here.
Thank you so much for reading.
Sam x
2574 comments
I was so lucky to win the $1 million prize in the lottery. I have been playing the powerball lottery for about 20 years, and i didn’t win any big amount until Dr. Lucas helped me with his spiritual winning numbers, I thought it was all fake until he gave me the numbers and directed me on how to play. He gave me assurance that I was going to win and asked me to give him 48 hours to finish his work, which I did. The third day, he gave me the numbers and gave me instructions on how to play, and luckily, I won. I want to let everyone who is reading this to know that this spell really works and you can also be a winner if you give it a try to see for yourself. The moment you contact Dr Lucas for help is the end of suffering in your life, he has been helping people around the world and I’m happy that I’m among those who has benefited from his great work he’s doing, you can reach him if you really want to win the lottery Email: Drlucasspelltemple@gmail.com Or WhatsApp +234 904 794 3567 Thank You
I was so lucky to win the $1 million prize in the lottery. I have been playing the powerball lottery for about 20 years, and i didn’t win any big amount until Dr. Lucas helped me with his spiritual winning numbers, I thought it was all fake until he gave me the numbers and directed me on how to play. He gave me assurance that I was going to win and asked me to give him 48 hours to finish his work, which I did. The third day, he gave me the numbers and gave me instructions on how to play, and luckily, I won. I want to let everyone who is reading this to know that this spell really works and you can also be a winner if you give it a try to see for yourself. The moment you contact Dr Lucas for help is the end of suffering in your life, he has been helping people around the world and I’m happy that I’m among those who has benefited from his great work he’s doing, you can reach him if you really want to win the lottery Email: Drlucasspelltemple@gmail.com Or WhatsApp +234 904 794 3567 Thank You
I used to be a very poor woman who has always not found luck when it comes to playing the lottery. I have been playing the lottery since I was 21 years and now I am 45 meaning I have been playing the lottery for 24 years. The biggest amount I have ever won in my life was 400 bucks. But one day my story turns to history after I find this man’s name on the Internet that he is the best when it comes to winning the lottery. This man is a very strong voodoo doc who gives out the numbers that can never fail. After all my years of laboring and struggling to win the lottery i finally won ( $27,000,000) Dr Alli is the name, Email: allispellhelp1@gmail.com or contact him on his whatsApp number +2348100772528 this is the only way to win the lottery and the best way
Un accompagnement remarquable dans notre projet immobilier. Mme Bonneaud Séverine a su faire preuve de réactivité et de professionnalisme concernant mon dossier de demande d’emprunt d’argent. Ses qualités et son équipe m’on permis d’obtenir mon prêt un montant de 37000€ à un très bon taux. J’encourage toute personne ayant besoin d’un financement à sollicitée Mme BONNEAUD SÉVERINE dont je vous passe l’adresse mail : bonneaudseverinepascalineariet@gmail.com
bonneaudseverinepascalineariet@gmail.com
I made an initial investment of roughly 87K USD on a Coastal Trading Options. After several transactions, I chose to withdraw my money because according to the website I had made a lot of profits, however the withdrawal was unsuccessful. I made several attempts in contacting them but it all failed. I made every effort and filed a report to recover my money by contacting the police department in charge of investigating fraudulent situations, but nothing was successful. Since my attempt with the police failed, I tried other possible means to make sure I recovered my scammed bitcoin. I reached out to a hacker whose reviews I had read online; Speed Swift Recovery, I contacted him via his email on:Speedexpertcrytocurrencyrecover@mail.com,
Whatsapp +12083405828: He came in handy and at the right time. He rescued me from these shady investment schemes with the help of their top-notch services. I got my funds back as well as my peace of mind