Staying away from home with late stage MND is an absolute mission. Specialist accommodation is massively rare so I stopped looking for accommodation that has everything I need a long time ago. Instead I find places that have enough space and hire or travel with all my equipment. To give you an idea my packing list for this trip had 76 items on it...
Of course I can't physically help to pack any of that, and trying to control too much of the process is a very fast path to massive frustration. However its not easy to let go when so much of that equipment is essential to keeping me alive and cared for, I need to have a lot of trust in my care team and thankfully I do.
Then of course there are the people who will physically push me around the London Marathon. Taking responsibility for my care at the same time. Not only do they have to be physically fit enough to comfortably run 26.2 miles, they have to monitor me and provide any interventions I may need. Distance running is traditionally a solo pursuit, taking on responsibility for me as well is a heroic effort in my view.
Then there are the people who organise the administrative side, the logistics and the publicity. Making sure all my equipment is where it needs to be, everyone has their accreditation, and that we raise some cash for research and care too.
In total that covers around 12 people. The vast majority of whom are unpaid. Those who are paid receive a fraction of what they deserve (that's a whole other blog post) and go above and beyond to help me a
ttempt these ridiculous challenges. Those 12 people are just the tip of the iceberg, my family, friends, trustees and of course all the amazing people who follow and support the charity all have my heartfelt gratitude. I don't really know how I've created this incredible support, or why so many people are willing to give up their time and energy to support me and the charity. It's beyond anything I hoped for or anticipated when we started Stand Against MND and I'm humbled by it.
It gives me the will to carry on, a purpose. Helps me maintain a positive attitude whilst being assaulted by the most brutal disease. Thank you. Every single one of you.
If you feel inspired to help us fund more vital research, you can donate here.
Thank you so much for reading.
Sam x
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REVIEW ON INSTANT LOVE SPELL THAT BROUGHT MY EX HUSBAND BACK TO ME IN LESS THAN 24HOURS CONTACT DR SARUMAN: WHATSAPP: +447477869404 OR EMAIL: PERFECTSOLUTIONTEMPLES@GMAIL.COM DR SARUMAN IS CERTAINLY THE BEST SPELL CASTER AND HIS RESULT IS 100% GUARANTEED. USA, UK, FRANCE, CANADA, AUSTRALIA, NETHERLANDS, AUSTRIA, BELGIUM, IRELAND.
Hello everyone,
I want to take a moment to share my incredible experience with DR SARUMAN and the powerful spell they cast for me. When I first reached out to DR SARUMAN, I was feeling lost and overwhelmed by a situation that seemed impossible to change. I had tried everything meditation, advice from friends, even other spiritual practices but nothing seemed to work. From the very first consultation, DR SARUMAN approach was different. They listened carefully to my story and took the time to understand the depth of my struggles. What struck me most was their genuine compassion and confidence. DR SARUMAN explained that they would perform a custom spell tailored specifically to my needs, and I felt a renewed sense of hope. The process was transparent, and DR SARUMAN kept me informed every step of the way. They used a combination of ancient rituals, powerful herbs, and positive energy to craft a spell that was both potent and safe. I followed all of DR SARUMAN guidance and maintained a positive mindset. Within just a few days after the spell was cast, I started noticing subtle but undeniable changes. Opportunities that I had previously thought were out of reach suddenly appeared. My mindset shifted from despair to optimism, and I began attracting positive energy into my life. Over the following weeks, the situation that once felt impossible began to unravel in my favor. Most remarkable was the sense of peace and confidence I gained. I felt empowered, as if a heavy burden had been lifted from my shoulders. Friends and family also commented on how much more positive and focused I seemed. To this day, I am truly grateful to DR SARUMAN for their skill, dedication, and the genuine care they showed throughout the process. Their spell has had a profound impact on my life, and I wholeheartedly recommend their services to anyone seeking real change. Thank you, DR SARUMAN, for your incredible work. You have truly made a difference in my life. Are you out there experiencing some problems in your marriage, You can reach him on his contact details, Website:https://perfectsolutiontemple.weebly.com https://www.facebook.com/permalink.php?story_fbid=pfbid0bdAy8QgDnZeQA3hnsQeYppZGqC2KYYUYKn4yZiiMXxAiyEmBRsP1v7bvJEmqnVd5l&id=61560420964460 Email: perfectsolutiontemples@gmail.com or you can chat him directly on his WhatsApp “+447477869404” or
https://wa.me/message/3NZXKYM72HSZO1 Youtube: https://youtu.be/wv5jF27EKIs
You can reach him for the following spell work:
STROKE CURE
MAKE YOUR LOVER LOVE YOU MORE,
WIN EX BACK,
FRUIT OF THE WOMB,
DIABETES,
REVENGE SPELL,
BUSINESS SPELL,
ATTRACTION SPELL,
LOTTERY SPELL,
MONEY RITUAL,
CANCERS,
COURT CASE…
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