Staying away from home with late stage MND is an absolute mission. Specialist accommodation is massively rare so I stopped looking for accommodation that has everything I need a long time ago. Instead I find places that have enough space and hire or travel with all my equipment. To give you an idea my packing list for this trip had 76 items on it...
Of course I can't physically help to pack any of that, and trying to control too much of the process is a very fast path to massive frustration. However its not easy to let go when so much of that equipment is essential to keeping me alive and cared for, I need to have a lot of trust in my care team and thankfully I do.
Then of course there are the people who will physically push me around the London Marathon. Taking responsibility for my care at the same time. Not only do they have to be physically fit enough to comfortably run 26.2 miles, they have to monitor me and provide any interventions I may need. Distance running is traditionally a solo pursuit, taking on responsibility for me as well is a heroic effort in my view.
Then there are the people who organise the administrative side, the logistics and the publicity. Making sure all my equipment is where it needs to be, everyone has their accreditation, and that we raise some cash for research and care too.
In total that covers around 12 people. The vast majority of whom are unpaid. Those who are paid receive a fraction of what they deserve (that's a whole other blog post) and go above and beyond to help me a
ttempt these ridiculous challenges. Those 12 people are just the tip of the iceberg, my family, friends, trustees and of course all the amazing people who follow and support the charity all have my heartfelt gratitude. I don't really know how I've created this incredible support, or why so many people are willing to give up their time and energy to support me and the charity. It's beyond anything I hoped for or anticipated when we started Stand Against MND and I'm humbled by it.
It gives me the will to carry on, a purpose. Helps me maintain a positive attitude whilst being assaulted by the most brutal disease. Thank you. Every single one of you.
If you feel inspired to help us fund more vital research, you can donate here.
Thank you so much for reading.
Sam x
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Recovering from a Cryptocurrency Scam: My Personal Experience
As a single mother seeking to improve my family’s financial situation, I was approached by a company called BTCM Company on Facebook, promoting a Bitcoin investment opportunity with promises of high returns. The offer appeared legitimate, and after being persuaded by their representatives, I invested $330,000, believing it would secure a better future for my children.
However, after two months, I discovered that I couldn’t withdraw any of my funds. It was then that I realized I had fallen victim to a sophisticated and well-organized scam. Desperate to recover my money, I reached out to several so-called “experts” and “hackers,” but they turned out to be scammers as well.
Just when I had lost all hope, I came across Icon Assets Recovery through a local community recommendation. Their team was professional, trustworthy, and worked tirelessly to recover my funds within just a week.
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Recovering from a Cryptocurrency Scam: My Personal Experience
As a single mother seeking to improve my family’s financial situation, I was approached by a company called BTCM Company on Facebook, promoting a Bitcoin investment opportunity with promises of high returns. The offer appeared legitimate, and after being persuaded by their representatives, I invested $330,000, believing it would secure a better future for my children.
However, after two months, I discovered that I couldn’t withdraw any of my funds. It was then that I realized I had fallen victim to a sophisticated and well-organized scam. Desperate to recover my money, I reached out to several so-called “experts” and “hackers,” but they turned out to be scammers as well.
Just when I had lost all hope, I came across Icon Assets Recovery through a local community recommendation. Their team was professional, trustworthy, and worked tirelessly to recover my funds within just a week.
I am incredibly grateful for their prompt and effective assistance. If you’ve fallen victim to online scams, I highly recommend Icon Assets Recovery. Their expertise and integrity set them apart in an industry overwhelmed by fraud.
For more information, please contact Icon Assets Recovery at:
Website: https://iconassetsrecovery.com
Email: service@iconassetsrecovery.com
WhatsApp: +1 (501) 249-3295
Telegram: @Iconassets_recovery
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Usmjeravanje #271081528
U svojoj ulozi radim s odjelima za osiguranje, obradu, financiranje i drugim odjelima. Svaki od ovih timova dolazi s ogromnim bogatstvom znanja. To mi omogućuje da steknem više znanja o svojoj ulozi i pružim članovima bolje iskustvo. Dobijte svoju financijsku slobodu od nas danas. Dugujete li, trebate zajam, brz i pouzdan, ovo je mjesto za dobivanje vjerodostojnih zajmova. Nudimo poslovne zajmove, studentske zajmove, stambene zajmove, osobne zajmove itd. Kamatna stopa zajma od 3%. Kontaktirajte nas danas. Imate priliku dobiti novčani zajam u iznosu od 2000 (€$£) – 5.000.000 – 100.000.000 (€$£) s mogućnošću otplate od 1 godine do 45 godina bez jamstva nekretnine.
Viber: +385915608706
WhatsApp: +385915608706
E-pošta: hybridalliantcreditunion@gmail.com
© 2025 Alliant Credit Union
11545 W. Touhy Ave., Chicago, IL 60666
Usmjeravanje #271081528
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