Staying away from home with late stage MND is an absolute mission. Specialist accommodation is massively rare so I stopped looking for accommodation that has everything I need a long time ago. Instead I find places that have enough space and hire or travel with all my equipment. To give you an idea my packing list for this trip had 76 items on it...
Of course I can't physically help to pack any of that, and trying to control too much of the process is a very fast path to massive frustration. However its not easy to let go when so much of that equipment is essential to keeping me alive and cared for, I need to have a lot of trust in my care team and thankfully I do.
Then of course there are the people who will physically push me around the London Marathon. Taking responsibility for my care at the same time. Not only do they have to be physically fit enough to comfortably run 26.2 miles, they have to monitor me and provide any interventions I may need. Distance running is traditionally a solo pursuit, taking on responsibility for me as well is a heroic effort in my view.
Then there are the people who organise the administrative side, the logistics and the publicity. Making sure all my equipment is where it needs to be, everyone has their accreditation, and that we raise some cash for research and care too.
In total that covers around 12 people. The vast majority of whom are unpaid. Those who are paid receive a fraction of what they deserve (that's a whole other blog post) and go above and beyond to help me a
ttempt these ridiculous challenges. Those 12 people are just the tip of the iceberg, my family, friends, trustees and of course all the amazing people who follow and support the charity all have my heartfelt gratitude. I don't really know how I've created this incredible support, or why so many people are willing to give up their time and energy to support me and the charity. It's beyond anything I hoped for or anticipated when we started Stand Against MND and I'm humbled by it.
It gives me the will to carry on, a purpose. Helps me maintain a positive attitude whilst being assaulted by the most brutal disease. Thank you. Every single one of you.
If you feel inspired to help us fund more vital research, you can donate here.
Thank you so much for reading.
Sam x
3175 comments
When I lost my money to online scammers through crypto investment, I never thought I could ever retrieve back my money again but I decided to give it a try after my Inlaw introduced me to this incredible honest hacker that she had worked with to retrieve back her bitcoin when she mistakenly sent it to a wrong wallet address when trying to make payment to someone, so when I brought up the issue of me loosing money to an online investment in a dinner at my place she was curious to hear how it happened and it turned out she still had the hackers contact which she provided me with later on, I reached out to them the next morning and provided the transaction hash, wallet address of the scammers and the website, I was surprised after receiving the first half of my money within just 48 hours and the rest is being traced back to the second wallet address I made payment to, Jamesmckaywizard and his team brought back my hope of living back to life because I never thought of what I could have done if I wasn’t able to recover this money back, this includes my retirement funds, I’m so grateful to the team for their effort and good service, if you’re encountering same issue kindly reach out to them on the provided details bellow:
Email: jamesmckaywizard at gmail dot com or WhatsApp +31… 657…. 4462….48.
Bitcoin and other cryptocurrency scams are becoming rampant as the day goes by. One should be careful when dealing with people online especially when it has to do with your funds. Getting back your stolen bitcoins is very easy but there are also alots of fraudulent recovery firms out there so you need to be careful not to end up being defrauded again. Jamesmckaywizard is the most trusted and reliable recovery firm online. They are the best recovery firm out there now. They are very fast and efficient in the recovery of your funds. To contact them ON EMAIL:jamesmckaywizard at gmail dot com or WhatsApp +31_ 657- 446- 248. You can simply send an email and you will be helped to recover 100% of you lost funds- I was able to recover all of my stolen bitcoins. They provide excellent service..
Good day everyone, some statements people make may appear unbelievable, yet they reflect their truth due to their personal experiences. I’m a truck driver and I enjoy playing the lottery, but it’s been 8 years without winning anything significant. I became upset over this and chose to seek help online from anyone skilled in using spells to win the lottery since my grandma had faith in spells and a story about Lord Meduza spells drew my interest. I obtained his contact information, and we discussed all aspects of how he could assist me. In less than 72 hours, Lord Meduza provided me with the lottery numbers I required after he completed the spell for me. I purchased my ticket online and followed the guidance of Lord Meduza, and now my life is fortunate because I won a $42.5 million Jackpot in the lottery I participated in. I’m thankful to Lord Meduza because he truly keeps his promises and I will donate $1 million to the orphanage homes in my town.
Email: Lordmeduzatemple@hotmail.com OR WhatsApp: +1 807 907 2687.
Investing online has been a main source of income, that’s why knowledge plays a very important role in humanity, you don’t need to overwork yourself for Moneyball you need the right information, and you could build your own wealth from the comfort of your home! Binary trading is dependent on timely signals, assets or controlled strategies which when mastered increases the chance of winning up to 90%-100% with trading. It’s possible to earn $10,000 to $20,000 trading weekly-monthly, just file a complaint with Jefferson, I had almost given up on everything about binary trading and ever getting my lost funds back, till i met with him, with his help now i have my lost funds back to my bank account and I can now trade successfully with his profitable strategies and software!! Email: Jeffersonluacs095@gmail.com
I never thought I would fall victim to a crypto scam until I was convinced of a crypto investment scam that saw me lose all my entire assets worth $487,000 to a crypto investment manager who convinced me I could earn more from my investment. I thought it was all gone for good but I kept looking for ways to get back my stolen crypto assets and finally came across Ethical Hack Recovery, a crypto recovery/spying company that has been very successful in the recovery of crypto for many other victims of crypto scams and people who lost access to their crypto. I’m truly grateful for their help as I was able to recover my stolen crypto assets and get my life back together. I highly recommend their services they carry out all kinds of hacking jobs contact them and thank me later
EMAIL ETHICALHACKERS009 AT @GMAIL DOT COM
whatsapp +14106350697