Staying away from home with late stage MND is an absolute mission. Specialist accommodation is massively rare so I stopped looking for accommodation that has everything I need a long time ago. Instead I find places that have enough space and hire or travel with all my equipment. To give you an idea my packing list for this trip had 76 items on it...
Of course I can't physically help to pack any of that, and trying to control too much of the process is a very fast path to massive frustration. However its not easy to let go when so much of that equipment is essential to keeping me alive and cared for, I need to have a lot of trust in my care team and thankfully I do.
Then of course there are the people who will physically push me around the London Marathon. Taking responsibility for my care at the same time. Not only do they have to be physically fit enough to comfortably run 26.2 miles, they have to monitor me and provide any interventions I may need. Distance running is traditionally a solo pursuit, taking on responsibility for me as well is a heroic effort in my view.
Then there are the people who organise the administrative side, the logistics and the publicity. Making sure all my equipment is where it needs to be, everyone has their accreditation, and that we raise some cash for research and care too.
In total that covers around 12 people. The vast majority of whom are unpaid. Those who are paid receive a fraction of what they deserve (that's a whole other blog post) and go above and beyond to help me a
ttempt these ridiculous challenges. Those 12 people are just the tip of the iceberg, my family, friends, trustees and of course all the amazing people who follow and support the charity all have my heartfelt gratitude. I don't really know how I've created this incredible support, or why so many people are willing to give up their time and energy to support me and the charity. It's beyond anything I hoped for or anticipated when we started Stand Against MND and I'm humbled by it.
It gives me the will to carry on, a purpose. Helps me maintain a positive attitude whilst being assaulted by the most brutal disease. Thank you. Every single one of you.
If you feel inspired to help us fund more vital research, you can donate here.
Thank you so much for reading.
Sam x
3066 comments
i have been diagnosed of herpes disease since 3 years ago and ever since then i have gone through all manners of challenges and so many more,i was very lucky one very day when i was searching the internet on how to get a cure,as i came across a testimony on how Dr PETER has cured so many people of their herpes disease, i had to contact his email address: peterherpescurehome@gmail.com, as i contacted him i told him of how i have been suffering from herpes disease for 3 years, he assured me of a solution that i will be cure of herpes disease,i obeyed his instruction followed all his words and he then prepared a herbal medicine and he told me that once i start using his herbal medicine i will be cure in 2 weeks and all the virus will be flush out, after he has prepared the herbal medicine, he sent the medicine to me which after 2 weeks i was indeed cured totally thank you once again Dr. PETER in case you also need his help contact him now: peterherpescurehome@gmail.com or WhatsApp https://wa.me/+2348101134761
Hire The Best Cryptocurrency Recovery Service / Lost Recovery Masters.
Lost Recovery Masters offers tailored assistance to simplify and enhance the recovery process for victims who have fallen victim to Bitcoin theft. Understanding how reliable recovered funds are to their clients, Lost Recovery Masters has emerged with extremely effective and professional Bitcoin recovery services. Lost Recovery Masters has a team of investigators from across the globe that are well prepared to help clients from wherever they may be which means that help will always be within reach.
Contact info.
Website ( https://lostrecoverymasters.com/ )
Email ( Support@lostrecoverymasters.com )
Whatsapp +44(7537)-105921
ARE YOU A VICTIM OF CRYPTOCURRENCY INVESTMENT FRAUD, FOREX OR NFT SCAM? SCHEDULE A MEETING WITH AN ETHICAL HACKER ASAP TO GET STARTED.
Workmanship fee is to be settled AFTER successful recovery.
Let us show you the art of Ethical Hacking….!
ASOREHACKCORP is a private group of financial regulators, private investigation and funds recovery body. We specialize in cases as regards ETHICAL HACKING, CRYPTOCURRENCY, FAKE INVESTMENT SCHEMES and RECOVERY SCAM. We are also experts in CREDIT REPAIR, we analyze what’s impacting your score.
All software tools needed to execute RECOVERIES from start to finish are available in stock.
Kindly NOTE that the available tools does NOT apply to CREDIT FIX.
Be ALERT to FABRICATED reviews and testimonies on the internet, do not get scammed twice.
Contact our team as soon as you can via the email address below to book a mail meeting with an ethical hacker.
asorehackcorp (@) gmail (.) com
Stay Safe out there !
Many people still question whether love spells work or not, permanent or effective. This can be based on past experiences where they tried some spell casters but were not fully satisfied with their results or the love spells worked for just a short period and sometimes even never saw any results. To avoid such situations you have to be careful with the spell casters you approach, some are limited with certain Spiritual powers to cast good love spells to help people in their relationships or marriages. Many good love spell casters are out there in the world (Africa, Asia, and so on) Yes, love spells really work, whether you are in a situation where you want to bring back your lost lover (lost lover spell), you want to get married to someone in a relationship (marriage spells), to increase love in your relationship (love affection spells) and many other related love spells, you will get help. It does not matter where you are or where your partner is, you don’t have to be unhappy about a situation you can solve,, it is all about finding a good love spell to change your love life. Prof Ibrahim is a celebrated love spell caster whose work has won him friendship all over the world from the people he met. To know more about spells and her wonderful work call on +27785149508. N.B. If u are in South Africa, he has private houses all over Gauteng for your privacy. E-mail us at Email:profibrahim98@gmail.com
https://africanspellcaster.mystrikingly.com
https://write.as/ibra/
powerfulspellcastertraditionalhealer27785149508197.home.blog
JOIN ILLUMINATI ORDER FOR RICH, WEALTH, FAME, LOVE, LUCK,call +27730066655
Join Illuminati society – world wealthy society – call +27730066655
You were born free and die free but will you live free? As long as habit and routine dictate the pattern of living, new dimensions of the soul will not emerge. JOIN our powerful society to gain and practice secret knowledge and information that was once only accessible by the privileged elite and society members. This is a private, exclusive, members-only global association.
No matter how much the rich have, they always want more. And the richer you are, the more you get. And the more you get, the less others get, so you are actively making the poor poorer. Isn’t that the world we live in? That’s how we have the 1% versus the 99%. They will take everything from us, unless we take it all back from them. The difference between a successful person and others is not a lack of strength, not a lack of knowledge, but rather a lack of will.
GET OUT OF POVERTY
Get off the poverty road and onto the path of prosperity now. If money has been tight and things haven’t been going very well financially, Our Illuminati society will empower you to change your life and live your life to the fullest.
INCREASE YOUR INCOME call +27730066655
Join our society so that you are empowered to get paid what you are worth. If you feel you’re just not getting paid what you’re worth and would like to increase your income, then you will be in the right place.
This works in one of two possible ways; many people get a sudden, unexpected promotion at the same company they have been working for, earning a lot more money than before, and other people find that they are suddenly presented with opportunities to move to a different job, making a lot more than they were before.
Are you self employed? a businessman? Do you want to become super rich than you are today..All our services have no string attached and no side effects to anybody
Call, +27730066655,email,profaafa22@gmail.com