Staying away from home with late stage MND is an absolute mission. Specialist accommodation is massively rare so I stopped looking for accommodation that has everything I need a long time ago. Instead I find places that have enough space and hire or travel with all my equipment. To give you an idea my packing list for this trip had 76 items on it...
Of course I can't physically help to pack any of that, and trying to control too much of the process is a very fast path to massive frustration. However its not easy to let go when so much of that equipment is essential to keeping me alive and cared for, I need to have a lot of trust in my care team and thankfully I do.
Then of course there are the people who will physically push me around the London Marathon. Taking responsibility for my care at the same time. Not only do they have to be physically fit enough to comfortably run 26.2 miles, they have to monitor me and provide any interventions I may need. Distance running is traditionally a solo pursuit, taking on responsibility for me as well is a heroic effort in my view.
Then there are the people who organise the administrative side, the logistics and the publicity. Making sure all my equipment is where it needs to be, everyone has their accreditation, and that we raise some cash for research and care too.
In total that covers around 12 people. The vast majority of whom are unpaid. Those who are paid receive a fraction of what they deserve (that's a whole other blog post) and go above and beyond to help me a
ttempt these ridiculous challenges. Those 12 people are just the tip of the iceberg, my family, friends, trustees and of course all the amazing people who follow and support the charity all have my heartfelt gratitude. I don't really know how I've created this incredible support, or why so many people are willing to give up their time and energy to support me and the charity. It's beyond anything I hoped for or anticipated when we started Stand Against MND and I'm humbled by it.
It gives me the will to carry on, a purpose. Helps me maintain a positive attitude whilst being assaulted by the most brutal disease. Thank you. Every single one of you.
If you feel inspired to help us fund more vital research, you can donate here.
Thank you so much for reading.
Sam x
4369 comments
I almost lost about $58,000 of my inheritance funds in a pig butchering scam on a Chinese trading platform after I got contacted by a stranger who pretended to be my friend using the new AI technology I fell for the deceit when I got a phone call with the same voice as my friend I thought it was a great investment project as she’s already benefiting from the profits of the investment so I decide to invest not knowing I’ve just been tricked. After few days of losing the money I found the best cryptocurrency recovery specialist at RecoveryBureauC (at)Gmail c0m so I hired them and told the team about my situation to my surprise I got my funds retrieved within few hours I reported my case to this firm. The service was seamless and perfect without any hassle. RecoveryBureauC (at)Gmail c0m has proven to be an efficient fund recovery firm and I’m glad they rescued me in my case. Kindly send a detailed report to this amazing cryptocurrency retrieval firm and get all your troubles fixed.
Contact info: RECOVERYBUREAUC@GMAIL.COM
WhatsApp: +1 763 898 2440
This firm offers other services such as
Remotely monitoring a suspected cheating partner’s phone
Website hacks
Clearing of criminal records Boost of credit scores
Rescue from a blackmailer (sextortionist) etc
I almost lost about $58,000 of my inheritance funds in a pig butchering scam on a Chinese trading platform after I got contacted by a stranger who pretended to be my friend using the new AI technology I fell for the deceit when I got a phone call with the same voice as my friend I thought it was a great investment project as she’s already benefiting from the profits of the investment so I decide to invest not knowing I’ve just been tricked. After few days of losing the money I found the best cryptocurrency recovery specialist at RecoveryBureauC (at)Gmail c0m so I hired them and told the team about my situation to my surprise I got my funds retrieved within few hours I reported my case to this firm. The service was seamless and perfect without any hassle. RecoveryBureauC (at)Gmail c0m has proven to be an efficient fund recovery firm and I’m glad they rescued me in my case. Kindly send a detailed report to this amazing cryptocurrency retrieval firm and get all your troubles fixed.
Contact info: RECOVERYBUREAUC@GMAIL.COM
WhatsApp: +1 763 898 2440
This firm offers other services such as
Remotely monitoring a suspected cheating partner’s phone
Website hacks
Clearing of criminal records Boost of credit scores
Rescue from a blackmailer (sextortionist) etc
If You’ve Been Scammed, You MUST Read This. My Story of Losing Everything and Getting it Back.
I can’t believe I’m here sharing this, but I just had to tell my story! Just a few months ago, I foolishly lost over $150k in Bitcoin to a fake investor I found online. It was an absolute nightmare, especially since a colleague of mine fell victim too. We were both feeling hopeless and defeated. Then, I confided in a close friend, who introduced me to an incredible team called JETWEBHACKERS. Skeptical but desperate, I reached out to them. To my amazement, they swiftly recovered my stolen digital assets, making what seemed impossible… possible! I can’t express what a relief it is to get my life back. If you’re in doubt or struggling to recover your lost investments, don’t hesitate to contact them! They have the expertise, tools, and commitment to help you reclaim your Bitcoin with integrity. I’m living proof that there’s hope beyond loss!
Reach out to them today and turn your situation around!
WEBSITE: jetwebhackers. com
EMAIL: jetwebhackers@gmail.com
Telegram: @jetwebhackers
WhatsApp: +1 (505) 428-8792
You can also contact them for the service below
Western Union Transfer
Blank atm card Bank Transfer PayPal / Skrill Transfer Crypto Mining CashApp Transfer Bitcoin Loans
Recover Stolen/Missing Crypto/Funds/Assets
A few months ago, shortly after going through a difficult divorce, I connected with someone online who introduced me to cryptocurrency investing. He appeared knowledgeable and trustworthy, and based on his guidance, I decided to invest nearly $550,000. Unfortunately, when I later attempted to access the account to withdraw both my initial investment and the expected returns, I realized I had been locked out. It became painfully clear that I had been the victim of a scam.
I promptly reported the incident to the Police and FBI and provided all the necessary documentation. While they took the matter seriously, they were ultimately unable to recover the funds.
Thankfully, a co-worker referred me to Professional Wizard Crypto Recovery Hackers. I contacted them and shared all the details of my case. They were responsive, professional, and compassionate from the very beginning. To my immense relief, they were able to recover the full amount I had lost within just a few weeks.
I’m truly grateful for their expertise and support throughout what was a deeply stressful experience. If anyone else finds themselves in a similar situation, I wholeheartedly recommend reaching out to Professional Wizard Crypto Recovery Hackers. They gave me hope when I thought all was lost and most importantly, they helped me get my money back.
For assistance or inquiries, you can contact PROFESSIONAL WIZARD CRYPTO HACKERS through:
Email: professionalwizardrecovery@programmer.net Email: professionalwizardrecovery@gmail.com WhatsApp: +44 7442 684963 Telegram: https://t.me/professionalwizardcryptohackersI was going through a rough time in my life and it greatly affected my union with my wife. We had so many emotional problems and struggles and this alone made us pay less attention to each other’s need. While i was on it trying to fix my problems and get back on my feet so that i can reshape my marriage and make it work better, my wife had women around her that influenced her wrongly and made her took the wrong part by walking away. That incident alone broke me and i was sure she wasnt doing everything she doing with her right senses. I did what i can to restore peace but it never worked and i had to Contact Dr Isikolo who made it possible for me fix the problem. He worked for me and restored back the love and connection between me and my wife and she returned back home. The result of his work started manifesting just after 48 hours as promised and i can bold say everything is fine between us now and we are both happy together, I am here to validate the information out there that Dr Isikolo is a good and honest man that you can trust to help you with your problems. His webpage: https://isikolo-temple.com and you can as well text him via WhatsApp +234-8133261196.