Staying away from home with late stage MND is an absolute mission. Specialist accommodation is massively rare so I stopped looking for accommodation that has everything I need a long time ago. Instead I find places that have enough space and hire or travel with all my equipment. To give you an idea my packing list for this trip had 76 items on it...
Of course I can't physically help to pack any of that, and trying to control too much of the process is a very fast path to massive frustration. However its not easy to let go when so much of that equipment is essential to keeping me alive and cared for, I need to have a lot of trust in my care team and thankfully I do.
Then of course there are the people who will physically push me around the London Marathon. Taking responsibility for my care at the same time. Not only do they have to be physically fit enough to comfortably run 26.2 miles, they have to monitor me and provide any interventions I may need. Distance running is traditionally a solo pursuit, taking on responsibility for me as well is a heroic effort in my view.
Then there are the people who organise the administrative side, the logistics and the publicity. Making sure all my equipment is where it needs to be, everyone has their accreditation, and that we raise some cash for research and care too.
In total that covers around 12 people. The vast majority of whom are unpaid. Those who are paid receive a fraction of what they deserve (that's a whole other blog post) and go above and beyond to help me a
ttempt these ridiculous challenges. Those 12 people are just the tip of the iceberg, my family, friends, trustees and of course all the amazing people who follow and support the charity all have my heartfelt gratitude. I don't really know how I've created this incredible support, or why so many people are willing to give up their time and energy to support me and the charity. It's beyond anything I hoped for or anticipated when we started Stand Against MND and I'm humbled by it.
It gives me the will to carry on, a purpose. Helps me maintain a positive attitude whilst being assaulted by the most brutal disease. Thank you. Every single one of you.
If you feel inspired to help us fund more vital research, you can donate here.
Thank you so much for reading.
Sam x
4369 comments
BEST LINK FOR RECOVERY SCAM ON TRADING INVESTMENT AND OTHERS TROUBLESHOOT?
Welcome To General Hacking Techniques Service known as DHACKERS.
Best active in 2025, as we give you Solution to every problem concerning Web3 INTERNET activities, we give back your right with a positive fund Recovery e.t.c.
Question From Most of Our Client Is.
HOW QUICK AND POSSIBLE DO YOU RECOVER LOST FUNDS BACK?
Our Answer.
Yes it’s 89.9% possible, and how Quick it will takes to recover it back depend on you.
Meanwhile they are lot of fake binary investment platform out their.
Same a lot fake recovery companies and agents too.
CAUTION
1). Make sure you ask one or two questions concerning the service and how they render there recovery services.
2) Do not give out your scammed details to any agent or hacker when you are not yet ready to recover back your fund.
3) do not make any payment when you are not sure of the service if you are to make one.
(4) We discovered that most of this fake hacker or agent do give us with scam details, playing the victim, because they can afford the service charges.
5) As long you have your scam details with you, you can recover your fund back anytime any-day with the right channel.
Contact us from our Front Desk. binaryoptionservice01@gmail.com
For advice and services, our standby Guru email. pointekhack@gmail.com
cyberplug@gmail.com
List of Service.
▶️Binary Recovery
▶️Data Recovery
▶️University Result Upgraded
▶️Clear your Internet Blunder and controversy
➡️Putting Stop to Internet Blackmailing
➡️Cracking of Credit Card
➡️Wiping of Criminal Records
➡️Social Media Hack
➡️Blank ATM Card
➡️Load and wipe
➡️Phone Hacking
➡️Private Key Reset etc.
For quick response. Email dhackerspot@gmail.com
Border us with your jobs and allow us give you positive result with our hacking skills.
All Right Reserved ©2025
How to Backup and Restore a Crypto Wallet/How To Find Lost Bitcoins/Wizard Larry Recovery
Wizard Larry Recovery is here to assist you if you have lost access to your bitcoin or have been the victim of an online scam. Their skilled staff, which has a track record of successfully recovering digital assets, tracks and recovers lost or stolen money using sophisticated cyber forensic tools and ethical hacking methods. Wizard Larry provides quick, discrete, and dependable recovery services regardless of whether you were the victim of a crypto wallet hack, phishing scam, or fraudulent investment platform. Get in touch with Wizard Larry to start the process of recovering what is rightfully yours and stop hackers from winning.
Email..support@)wizardlarryrecovery.com
WhatsApp…+447 (311) 146 749 OR +1(616) 292-4789
Telegram…https://t.me/wizardlarryrecovery
Website…. www.wizardlarryrecovery. com
Hi guys, my name is Sarah Flower, I ended my marriage in 2024 due to suffering from domestic abuse at the hands of my husband. Currently, he is trying to reconcile with me after finding out that I won a Jackpot Lottery Prize of $96 million. Fortunately, I received assistance online from Lord Meduza, the great spell caster who has successfully aided many individuals worldwide in winning the lottery. I reached out to him about my circumstances and expressed my desire to win the lottery. After casting the spell, he provided me with the exact numbers to play. Now, my husband wants me back, fully aware of my $96 million lottery win, but I told him no; I will not return to him. I am incredibly grateful to Lord Meduza, and if you find yourself facing a tough situation, I recommend that you reach out to him as he’s the best in his field. You can contact him on his
Email: lordmeduzatemple@hotmail.com
WhatsApp: +1 807 907 2687.
Good luck.
Are you facing the legal issues? are you wrongly accused ? are you unfairly judged ? does your case seem impossible to win? let Dr Ilekhojie help you and Let you be free. Spells to drop charges against you will work whether you’re caught on wrong side of the law or you’re being unfairly charged. it’s for you to decide which rituals you would want to use in completing spells that will lead to drop your charges because almost with any rituals, you can make sure they drop charges against you. Dr Ilekhojie is considered to be the strongest among all. Kindly contact him to know the best ritual for your court case today.
DR ILEKHOJIE
CONTACT 【+2348147400259】
Web https://gethelps.online
Are you facing the legal issues? are you wrongly accused ? are you unfairly judged ? does your case seem impossible to win? let Dr Ilekhojie help you and Let you be free. Spells to drop charges against you will work whether you’re caught on wrong side of the law or you’re being unfairly charged. it’s for you to decide which rituals you would want to use in completing spells that will lead to drop your charges because almost with any rituals, you can make sure they drop charges against you. Dr Ilekhojie is considered to be the strongest among all. Kindly contact him to know the best ritual for your court case today.
DR ILEKHOJIE
CONTACT 【+2348147400259】
Web https://gethelps.online