With a Little Help

April 19, 2024

It's now Friday afternoon and I'm settled into my London accommodation. Members of the team are running around London getting the final pieces of admin done ahead of Sunday. Everything seems to be going to plan and one of the only things left to do is get round the course!

Staying away from home with late stage MND is an absolute mission. Specialist accommodation is massively rare so I stopped looking for accommodation that has everything I need a long time ago. Instead I find places that have enough space and hire or travel with all my equipment. To give you an idea my packing list for this trip had 76 items on it...

Of course I can't physically help to pack any of that, and trying to control too much of the process is a very fast path to massive frustration. However its not easy to let go when so much of that equipment is essential to keeping me alive and cared for, I need to have a lot of trust in my care team and thankfully I do.

Then of course there are the people who will physically push me around the London Marathon. Taking responsibility for my care at the same time. Not only do they have to be physically fit enough to comfortably run 26.2 miles, they have to monitor me and provide any interventions I may need. Distance running is traditionally a solo pursuit, taking on responsibility for me as well is a heroic effort in my view.

Then there are the people who organise the administrative side, the logistics and the publicity. Making sure all my equipment is where it needs to be, everyone has their accreditation, and that we raise some cash for research and care too.

In total that covers around 12 people. The vast majority of whom are unpaid. Those who are paid receive a fraction of what they deserve (that's a whole other blog post) and go above and beyond to help me a

ttempt these ridiculous challenges. Those 12 people are just the tip of the iceberg, my family, friends, trustees and of course all the amazing people who follow and support the charity all have my heartfelt gratitude.

I don't really know how I've created this incredible support, or why so many people are willing to give up their time and energy to support me and the charity. It's beyond anything I hoped for or anticipated when we started Stand Against MND and I'm humbled by it.

It gives me the will to carry on, a purpose. Helps me maintain a positive attitude whilst being assaulted by the most brutal disease. Thank you. Every single one of you.

If you feel inspired to help us fund more vital research, you can donate here.

Thank you so much for reading.

Sam x

Back to blog

4363 comments

https://thai-sup-pa-rer-2.readme.io/reference/ดู-สัปเหร่อ-2-เต็มเรื่อง
https://thai-sup-pa-rer-2.readme.io/
https://vlink.cc/thaisupparer2
https://theundertaker2freethai.readme.io/
https://rottai.readme.io/
https://agoodyesterdayep-2.readme.io/
https://dareyoutodeathep-9.readme.io/
https://lovephobiaep-1.readme.io/
https://frozenvalentineep-2.readme.io/
https://missingep-11.readme.io/
https://7prachanbanep-5.readme.io/
https://heartcodeep-3.readme.io/
https://playparkep.readme.io/
https://in-your-radiant-season-ep-1.readme.io/
https://x.com/paticianita/status/2023980050324869566
https://flipboard.com/@herbertlawson/ruikdsnfjkdf-pvkcmlcsy
https://raindrop.io/herbertlawson034/tahjdias-67064646
https://papaly.com/categories/share?id=e8fc22133fd946e894ab3f85ebc2bb70
https://x.com/paticianita/status/2023826112426786954

https://contra.com/community/UreKz2JO-optimize-your-thai-series-experience-with
https://www.ths.ac.th/question/iusdhfid/
https://forum.phuongnamedu.vn/threads/hfhkjsdiufds.233657/
https://www.tipga.com/e/6995823b3286fe18e69fa264
https://forums.siliconera.com/threads/hjksadnaskdsad.148347/
https://community.wongcw.com/posts/1211777
https://prasatnas.com/posts/265587
https://diendannhansu.com/threads/bsjdfnisdfsdfds.898867/
https://www.TwosApp.com/69958309ab7f3575208065b1
https://herbalmeds-forum.biolife.com.my/d/388264-oaijsdoiasdsad
https://multy.me/TiLzt
https://ok.ru/profile/910136721401/statuses/157288309129465
https://connect.usama.dev/posts/68766
https://chobaolam.vn/threads/akjkdasdad.854406/
https://lebanonhub.app/posts/840079
https://www.audacity-forum.de/index.php?thread/26365-iushjfdosadfds/
https://tooter.in/herbertlawson034/posts/116090906177019025
https://mastodon.social/roatghuang/116090905535349445 https://hub.vroid.com/en/characters/344450975451452881/models/9111683789567920342 https://bsky.app/profile/did:plc:dn5oxdqg3pvgevepoopsaf57/post/3mf4qxci62k2l https://matters.town/a/4q4ug2g23iu5 https://nichey.net/post/336135_https-thai-sup-pa-rer-2-readme-io-https-vlink-cc-thaisupparer2-https-theundertak.html https://chouseisan.com/s?h=e7230dc36cad47bd85fb31d5ab27aca4 https://scrapbox.io/iuhdsfoisdfsdf/aiuhskdsadsad https://start.me/w/DglDEz https://tempel.in/view/HBJbvf https://businessboostier.mn.co/posts/98137936 https://hackmd.io/0hu9d8Z2TC2u2bktU8K3Pw/rJo8OW7_-g
https://magic.ly/ikandksadasd/nvsndodjfsdds
https://medium.com/@herbertlawson034/njvsdiufnsdfdsf-af70983daf43
https://wokwi.com/projects/456286444214943745

After a devastating scam took my Bitcoin, I believed it was lost forever. I felt helpless.
Then I contacted META Tech Cyber Cryptocurrency Trace. Their experts tracked my funds and successfully recovered a majority of my stolen crypto. Their skill and dedication changed everything.
If you’re in a similar situation, don’t give up. Reach out to them.

Email: bryanpuhgehacker@gmail.com

Text message: +1 (619) 289 9154

WhatsApp: +1 (825) 585-8813

Thank You

They are the real deal.

https://one789bet.mssg.me/
https://movie24h.info/
https://movie24h.info/contact
https://movie24h.info/huayThai
https://portfolium.com/entry/top-7-2025-3
https://portfolium.com/entry/truett-person-645-100
https://portfolium.com/entry/top-10-100
https://portfolium.com/entry/top-7-2568
https://portfolium.com/entry/top-7-2025-2
https://portfolium.com/entry/jackson-williams-30129725
https://portfolium.com/entry/thunder-thunder-100
https://portfolium.com/entry/top-4-2025
https://portfolium.com/entry/top-10-25
https://portfolium.com/entry/hehjdjdj-hehjdjdj-100
https://portfolium.com/entry/top-7-2025-1
https://portfolium.com/entry/top-7-2025
https://portfolium.com/entry/nsjdjdkd-wiwkkwlw-100
https://portfolium.com/entry/top-10-24
https://portfolium.com/entry/balmiki-kumar-100
https://portfolium.com/entry/1-261
https://portfolium.com/entry/cucu-darna-2025
https://portfolium.com/entry/1-260
https://portfolium.com/entry/1-259
https://portfolium.com/entry/rioqrandy-rioqrandy-2025
https://portfolium.com/entry/sidiidf-sisieiiw-2025
https://portfolium.com/entry/1-256
https://portfolium.com/entry/balmiki-kumar-30129725
https://portfolium.com/entry/top-7-2568-1
https://portfolium.com/entry/jjskkd-ejejjf-100
https://portfolium.com/entry/1-264
https://portfolium.com/entry/top-7-2025-5
https://portfolium.com/entry/top-7-2025-4
https://portfolium.com/entry/1-266
https://portfolium.com/entry/top-7-2025-6
https://portfolium.com/entry/1-267
https://portfolium.com/entry/sadil-sultn-2568
https://portfolium.com/entry/amel-darna-2025
https://portfolium.com/entry/top-7-2025-7
https://portfolium.com/entry/evan-darna-100
https://portfolium.com/entry/1-270
https://portfolium.com/entry/top-7-2025-8
https://portfolium.com/entry/ade-rizki-30129725
https://portfolium.com/entry/top10-20
https://portfolium.com/entry/1-271
https://portfolium.com/entry/top8
https://portfolium.com/entry/1-272
https://medium.com/trenoiye/ซื้อหวยออนไลน์เว็บไหนดี-10-เชื่อถือได้-จ่ายจริง-รวมเว็บหวยออนไลน์-0861729ff258 https://medium.com/trenoiye/หวยออนไลน์-เว็บแทงหวย-24-ชม-เว็บตรง-ไม่อั้น-หวยไทย-หวยลาว-bbe345b22fcb
https://medium.com/gimiidadii/แนะนำ-10-เว็บแทงหวยออนไลน์-ที่ดีที่สุด-ได้แก่-77lotto-huay-ork-ufalotto-powerball-lotto-net-1a7c8c97d756 https://medium.com/gimiidadii/ซื้อหวยออนไลน์เว็บไหนดี-10-เชื่อถือได้-จ่ายจริง-รวมเว็บหวยออนไลน์-f945cb29c5e3
https://medium.com/gimiidadii/หวยออนไลน์-เว็บหวยออนไลน์-แทงหวย24-ไม่มีเลขอั้น-หวยไทย-หวยลาว-44ba32159cf9 https://medium.com/naafessaa/หวยออนไลน์-เว็บแทงหวย-24-ชม-เว็บตรง-ไม่อั้น-หวยไทย-หวยลาว-ac7a417cd69a
https://medium.com/naafessaa/ซื้อหวยออนไลน์เว็บไหนดี-10-เชื่อถือได้-จ่ายจริง-รวมเว็บหวยออนไลน์-93a833aaeead https://medium.com/naafessaa/️-️แทงหวยออนไลน์-24-ชั่วโมงแทงหวย24-เว็บแทงหวยยอดนิยม-ครบจบทุกหวยออนไลน์ง่ายๆ-acdc9c656847
https://medium.com/qavviikhan/แทงหวย24-เว็บแทงหวยออนไลน์อันดับหนึ่ง-ซื้อหวยออนไลน์เว็บไหนดี-10-เชื่อถือได้-จ่ายจริง-895b0f709624 https://medium.com/qavviikhan/ซื้อหวยออนไลน์เว็บไหนดี-10-เชื่อถือได้-จ่ายจริง-รวมเว็บหวยออนไลน์-68fc296d571d
https://medium.com/qavviikhan/แทงหวยออนไลน์-24-ชั่วโมง-หวยออนไลน์-ซื้อง่าย-เว็บแทงหวย-ตรวจหวยฟรี-24-ชม-cc0461e8c431 https://medium.com/shaniiibhi/หวยออนไลน์-ซื้อง่าย-เว็บแทงหวย-ตรวจหวยฟรี-24-ชม-b96efd2e8e51

Item added to your cart

With a Little Help

4363 comments

Leave a comment