Staying away from home with late stage MND is an absolute mission. Specialist accommodation is massively rare so I stopped looking for accommodation that has everything I need a long time ago. Instead I find places that have enough space and hire or travel with all my equipment. To give you an idea my packing list for this trip had 76 items on it...
Of course I can't physically help to pack any of that, and trying to control too much of the process is a very fast path to massive frustration. However its not easy to let go when so much of that equipment is essential to keeping me alive and cared for, I need to have a lot of trust in my care team and thankfully I do.
Then of course there are the people who will physically push me around the London Marathon. Taking responsibility for my care at the same time. Not only do they have to be physically fit enough to comfortably run 26.2 miles, they have to monitor me and provide any interventions I may need. Distance running is traditionally a solo pursuit, taking on responsibility for me as well is a heroic effort in my view.
Then there are the people who organise the administrative side, the logistics and the publicity. Making sure all my equipment is where it needs to be, everyone has their accreditation, and that we raise some cash for research and care too.
In total that covers around 12 people. The vast majority of whom are unpaid. Those who are paid receive a fraction of what they deserve (that's a whole other blog post) and go above and beyond to help me a
ttempt these ridiculous challenges. Those 12 people are just the tip of the iceberg, my family, friends, trustees and of course all the amazing people who follow and support the charity all have my heartfelt gratitude. I don't really know how I've created this incredible support, or why so many people are willing to give up their time and energy to support me and the charity. It's beyond anything I hoped for or anticipated when we started Stand Against MND and I'm humbled by it.
It gives me the will to carry on, a purpose. Helps me maintain a positive attitude whilst being assaulted by the most brutal disease. Thank you. Every single one of you.
If you feel inspired to help us fund more vital research, you can donate here.
Thank you so much for reading.
Sam x
4367 comments
Good day.
Am Greg Elias Bitcoin/Blank ATM Card.
Have you been trying to get a blank ATM Card Or invest into Bitcoin and it has been an issue due to you can get right person to make your order from? Here at
( investmentcards247@gmail.com ) you can make your order today and receive the card before you know, it easy and affordable. Contact us
now at: investmentcards247@gmail.com
We have special cash loaded programmed ATM card and bitcoin for you to meet up with those needs of yours and also start up your own business as my cards can be use in any part of the world at any ATM machines, stores and POS. With a daily limit of $3000 to $50,000.00 and
available in any currency with our programmed cards. Contact me at:
investmentcards247@gmail.com
5X times your investment on 5hours cash out;
Invest $150 profit is $750
Invest $200 profit is $1,000
Invest $300 profit is $1,500
Invest $500 profit is $2,500
Invest $1,000 profit is $5,000
Invest $2,000 profit is $10,000
Invest $3,000 profit is $15,000
Cost of cards available;
$3000 cost $200
$6000 cost $400
$9000 cost $600
$12,000 cost $900
$15,000 cost $1,200
$18,000 cost $1,500
$21,000 cost $1,800
$25,000 cost $2,500
Contact us with the follow information below now at investmentcards247@gmail.com
Full Name :
Country:
State:
Phone Number:
Date of birth:
Home Address:
Amount needed/Amount to invest:
Email address: investmentcards247@gmail.com
You can never been so sure on till you have giving it a try by contacting us today for your order..
Thanks.
Greg Elias.
My life has turned around for the better since I started working with Dr Ilekhojie. Since I had my son in 2015, I have always attracted men who are losers and men who have nothing to offer in a relationship or marriage. It went on for years until a coworker introduced me to Dr Ilekhojie. He explained to me that he is going to perform a harmless ritual for me which will ensure that men of high value always come my way. Contrary to what everyone said, having a child was not the reason I find it hard to get a good man. He told me all i needed to do and provide and within a week, I met my current husband who is a successful surgeon and it has been 3 months and he has changed our lives. I had a lot to select from after Dr Ilekhojie finished his work which was like a dream to me. Now I have fulfilled because I do not have to worry about anything else as i have my dream man. you can also have your wishes by contacting him directly for help. Whatsapp +2348147400259 or via his Webpage https://gethelps.online
after being in relationship with him for seven years, he broke up with me, I did everything possible to bring him back but all was in vain. I wanted him back so much because of the love I have for him and I begged him with everything, I made promises but he refused. I contacted a spell caster called DR ISIKOLO that could help me cast a spell to bring him back but I am the type that never believed in spell, I had no choice than to try it, I mailed the spell caster, and he told me there was no problem that everything will be okay before two days, that my ex will return to me before three days, he cast the spell and surprisingly in the second day, it was around 4pm. My ex called me and we resolved the differences and we are happy together now. Anybody could need the help of the spell caster and you can review his website (https://isikolo-temple.com) or call/text him via WhatsApp on: +2348133261196.
The marital crisis I was going through came to and end when Dr Isikolo got involved. Just like every other couples out there, we had our differences and I ensure I did my best to lead her right, provide for her and my kids and also protected them. We both made sacrifices to ensure we survived the union until she started acting up and deliberately had so many fights with me. The home became unpleasant for everyone else including my children. She was being manipulated by a friend who had been divorced and wanted to also ruin my marriage. I had to contact Dr Isikolo and he responded and did his best to end the issues. He restored the love and connection between us and I can tell now that whatever illusion my wife was under has been taking away and she is a better woman now. The result of what Dr Isikolo did for me that manifested after two days was what amazed me. I and my household remain grateful. I appeal to anyone who needs help to fix their relationships and marital problems to contact Dr Isikolo because the solution is sure. His webpage: https://isikolo-temple.com or text him on WhatsApp via +2348133261196
After retiring from the Healthcare section with over 38 years of service, I thought I’d done everything right—saved diligently, invested wisely, and set myself up for a peaceful retirement. But I got caught in something I never expected. I invested $375,000—my life savings—into what I thought was a legitimate crypto trading platform. It all looked real, until one day, everything disappeared. The platform vanished, and I was left with nothing. I felt sick, angry, and completely lost.
That’s when I came across PROFESSIONAL WIZARD HACKERS. Honestly, I didn’t have high hopes. I figured once money is gone in the crypto world, it’s gone for good. But from the first conversation, their team was different. They were real professional, honest, and incredibly knowledgeable. They didn’t make wild promises—they explained the process clearly, laid out what they needed from me, and got to work right away.
To my surprise, the whole process was smoother and faster than I ever expected. They tracked the transaction trail, worked with blockchain data, and coordinated with exchanges. I didn’t have to deal with any of the technical stuff—they handled it all. They kept me updated every step of the way, which really helped me feel at ease.
After just a few weeks, I couldn’t believe it—they recovered every penny I lost. My savings are now back in my hands, safe and secure.
If you’ve been scammed or lost money through crypto, I’m here to tell you: don’t give up. PROFESSIONAL WIZARD RECOVERY HACKERS gave me back my peace of mind and my financial future. I can’t recommend them highly enough. They’re the real deal and they can be contacted through their contact details below.
Contact us today: via ?? Email: professionalwizardrecovery@programmer.net
Telegram: https://t.me/professionalwizardcryptohackers
Contact, professionalwizardrecovery@gmail.com
WhatsApp +44 7442 684963