Staying away from home with late stage MND is an absolute mission. Specialist accommodation is massively rare so I stopped looking for accommodation that has everything I need a long time ago. Instead I find places that have enough space and hire or travel with all my equipment. To give you an idea my packing list for this trip had 76 items on it...
Of course I can't physically help to pack any of that, and trying to control too much of the process is a very fast path to massive frustration. However its not easy to let go when so much of that equipment is essential to keeping me alive and cared for, I need to have a lot of trust in my care team and thankfully I do.
Then of course there are the people who will physically push me around the London Marathon. Taking responsibility for my care at the same time. Not only do they have to be physically fit enough to comfortably run 26.2 miles, they have to monitor me and provide any interventions I may need. Distance running is traditionally a solo pursuit, taking on responsibility for me as well is a heroic effort in my view.
Then there are the people who organise the administrative side, the logistics and the publicity. Making sure all my equipment is where it needs to be, everyone has their accreditation, and that we raise some cash for research and care too.
In total that covers around 12 people. The vast majority of whom are unpaid. Those who are paid receive a fraction of what they deserve (that's a whole other blog post) and go above and beyond to help me a
ttempt these ridiculous challenges. Those 12 people are just the tip of the iceberg, my family, friends, trustees and of course all the amazing people who follow and support the charity all have my heartfelt gratitude. I don't really know how I've created this incredible support, or why so many people are willing to give up their time and energy to support me and the charity. It's beyond anything I hoped for or anticipated when we started Stand Against MND and I'm humbled by it.
It gives me the will to carry on, a purpose. Helps me maintain a positive attitude whilst being assaulted by the most brutal disease. Thank you. Every single one of you.
If you feel inspired to help us fund more vital research, you can donate here.
Thank you so much for reading.
Sam x
4365 comments
RecoveryBureauC Successfully Recovered My USDT/BTC From GainBitcoin Scam.
My name is Mukesh and I was a victim of a GainBitcoin scam where I was promised huge returns from my investment not knowing I was being conned by GainBitcoin, I lost 22 million Indian rupees to this scam which I thought was gone forever after the whole scheme was down, however, I came across RecoveryBureauC Service, who was able to help me trace and recover my USDT and BTC funds and after several months of waiting for the CBI to begin their investigation, RecoveryBureauC Cyber Service was able to help me recover my USDT/BTC in a few hours. It’s such a pity that such a scam could be allowed to continue for so long and if not for the services of RecoveryBureauC Cyber Service, I would have lost my money forever. I’m recommending RecoveryBureauC services to everyone affected by the GainBitcoin scam. I can confidently assure you that RecoveryBureauC can recover any crypto assets no matter how long you have lost them. Below is their contact information.
E-mail: RecoveryBureauC @ gmail, c0m
Hello my name is Corie Johnson from USA I want to tell the world about the great and mighty spell caster called PRIEST ELIJAH my husband was cheating on me and no longer committed to me and our kids when I asked him what the problem was he told me he has fell out of love for me and wanted a divorce I was so heartbroken I cried all day and night but he left home I was looking for something online when I saw an article how the great and powerful PRIEST ELIJAH have helped so many in a similar situation like mine he email address was there so I sent him an email telling him about my problem he told me he shall return back to me within 24hrs I did everything he asked me to do the nest day to my greatest surprise my husband came back home and was crying and begging for me to forgive and accept him back he can also help you contact
universalspellhelp@gmail.com or universalspellhelp@yahoo.com
WhatsApp/Text [+2347054380994]
Website: https://universalspellhelp.wixsite.com/priestelijah
REAL AND BEST LOVE SPELL CASTER
Hello everyone, my name is Marianna from California. I want to share my story about a powerful spell caster named Dr. Masako. I was heartbroken when my fiancé left me without warning, and I spent the last month feeling confused, guilty, and devastated. Desperate for help, I searched online for relationship advice and found Dr. Masako, who has helped many people with their relationship problems. I reached out to him, and he promised to bring my fiancé back to me within 24 hours. After following his instructions, my fiancé surprisingly showed up at my doorstep, apologized, and now we’re living happily together again. If you’re having relationship issues, you can contact Dr. Masako at Email: doctormasako@gmail. com
WhatsApp: +2349047144277
Hello my name is Corie Johnson from USA I want to tell the world about the great and mighty spell caster called PRIEST ELIJAH my husband was cheating on me and no longer committed to me and our kids when I asked him what the problem was he told me he has fell out of love for me and wanted a divorce I was so heartbroken I cried all day and night but he left home I was looking for something online when I saw an article how the great and powerful PRIEST ELIJAH have helped so many in a similar situation like mine he email address was there so I sent him an email telling him about my problem he told me he shall return back to me within 24hrs I did everything he asked me to do the nest day to my greatest surprise my husband came back home and was crying and begging for me to forgive and accept him back he can also help you contact
universalspellhelp@gmail.com or universalspellhelp@yahoo.com
WhatsApp/Text [+2347054380994]
Website: https://universalspellhelp.wixsite.com/priestelijah
After losing $450,000 worth of Bitcoin to a scam, I felt completely defeated. I tried several recovery companies over the course of many months, but none delivered results—most only added to my frustration and hopelessness. Then I found Swift Assets Recovery, and everything changed. From the beginning, their team showed genuine professionalism, transparency, and a clear understanding of how crypto scams operate. Unlike the others, they didn’t make empty promises—they took action. They worked tirelessly, kept me informed at every stage, and, most importantly, they succeeded in recovering my stolen Bitcoin. I can’t express how grateful I am for their help. Swift Assets Recovery restored not only my funds but my peace of mind. If you’ve been scammed and feel like you’ve run out of options, don’t give up—Swift Assets Recovery truly delivers. Email:(swiftrecoveryservice006 (@)gmail . com) or WhatsApp number: +1 (352) 436-7955 Or Telegram @SWIFT_HACKING Website https://swiftspyassetsrecovery.com