Staying away from home with late stage MND is an absolute mission. Specialist accommodation is massively rare so I stopped looking for accommodation that has everything I need a long time ago. Instead I find places that have enough space and hire or travel with all my equipment. To give you an idea my packing list for this trip had 76 items on it...
Of course I can't physically help to pack any of that, and trying to control too much of the process is a very fast path to massive frustration. However its not easy to let go when so much of that equipment is essential to keeping me alive and cared for, I need to have a lot of trust in my care team and thankfully I do.
Then of course there are the people who will physically push me around the London Marathon. Taking responsibility for my care at the same time. Not only do they have to be physically fit enough to comfortably run 26.2 miles, they have to monitor me and provide any interventions I may need. Distance running is traditionally a solo pursuit, taking on responsibility for me as well is a heroic effort in my view.
Then there are the people who organise the administrative side, the logistics and the publicity. Making sure all my equipment is where it needs to be, everyone has their accreditation, and that we raise some cash for research and care too.
In total that covers around 12 people. The vast majority of whom are unpaid. Those who are paid receive a fraction of what they deserve (that's a whole other blog post) and go above and beyond to help me a
ttempt these ridiculous challenges. Those 12 people are just the tip of the iceberg, my family, friends, trustees and of course all the amazing people who follow and support the charity all have my heartfelt gratitude. I don't really know how I've created this incredible support, or why so many people are willing to give up their time and energy to support me and the charity. It's beyond anything I hoped for or anticipated when we started Stand Against MND and I'm humbled by it.
It gives me the will to carry on, a purpose. Helps me maintain a positive attitude whilst being assaulted by the most brutal disease. Thank you. Every single one of you.
If you feel inspired to help us fund more vital research, you can donate here.
Thank you so much for reading.
Sam x
4363 comments
Potential investors are hesitant to seize this profitable investment opportunity due to the depressing rise in internet theft that targets digital assets. Contact : ghostchampionrecovery@cyberservices.com .
I myself lost $123,850 after falling for a scam from an online Pocket Options Broker. They lured me in by promising me large profits on my money, but I was turned away when I attempted to visit the investing website later. I tried to get in touch with their support staff, but I quickly discovered that I had been scammed.
I was desperate to get my money back, so I looked online for answers and found GHOST CHAMPION RECOVERY PRO. I was drawn to his stellar reputation for offering top-notch recovery services. I took a chance and contacted him, and to my surprise, He was able to assist me get back all of the money I had lost within 72 hours. My gratitude for his exceptional service is beyond words.
For unparalleled recovery support, I highly suggest contacting GHOST at (ghostchampionwizard@gmail.com ) if you find yourself in a similar circumstance.
📱 Telegram: https://t.me/WizardGhosthacker
📞 WhatsApp: +44 7383450230
I will always be grateful to Wizard James Recovery’s outstanding help in getting back the $123,000 I lost to a cryptocurrency fraud. This sum was intended to pay for my wife’s urgent medical expenses, but I was duped by a scammer posing as Agent Janet who promised me a $246,000 return. Wizard James’s knowledge and commitment allowed me to get back not just my original money but also the profit I had been promised. With their assistance, my family has been blessed and we can now concentrate on my wife’s recovery without worrying about money. Wizard James Recovery is a great resource for anyone who has been scammed through cryptocurrency. They are sympathetic, effective, and professional. We appreciate your wonderful assistance and support during an extremely difficult period. Contact Wizard James through their emergency email: wizardjamesrecovery@usa.com
During the pandemic, I made an attempt to invest my savings in a transaction conducted by a forex broker. Since then, I’ve been making attempts to withdraw my money, and each time, I’ve been asked to pay various fees in addition to the applicable taxes. I found out that it was all a fraud on June 30 of the previous month, and I have already lost a total of $148,000 because of it. A buddy of mine who is quite informed about the internet suggested that I use recoveryhacker101. I emailed them, and in response, they requested that we continue our conversation on WhatsApp. I did as they had instructed me to do. After getting in touch with recoveryhacker101 and waiting for 32 hours, I got a notification on my phone informing me that all of my money had been returned to me in its whole and without any explanations. I am putting this together because a significant number of people have informed me that they attempted to collect their money online but fell victim to a scam. Send an email to recoveryhacker101@gmailcom
Good day everyone, some statements people make may appear unbelievable, yet they reflect their truth due to their personal experiences. I’m a truck driver and I enjoy playing the lottery, but it’s been 8 years without winning anything significant. I became upset over this and chose to seek help online from anyone skilled in using spells to win the lottery since my grandma had faith in spells and a story about Lord Meduza spells drew my interest. I obtained his contact information, and we discussed all aspects of how he could assist me. In less than 72 hours, Lord Meduza provided me with the lottery numbers I required after he completed the spell for me. I purchased my ticket online, followed the guidance of Lord Meduza, and now my life is fortunate because I won a $42.5 million Jackpot in the lottery I participated in. I’m thankful to Lord Meduza because he truly keeps his promises and I will donate $1 million to the orphanage homes in my town.
Email: Lordmeduzatemple@hotmail.com OR WhatsApp +1 807 907 2687.
With my experience working with Dr Isikolo, i came to the conclusion there are very good and honest people out there who can truly do all they can to fix whatever problems you have even when they are not known to you visibly or see them in person. I lost my marriage for not being able to fully what it means to lead a woman right and accept the fact that they are wired in a way we men can never understand. I had to seek help from Dr Isikolo knowing my wife is a good woman whom i cant loose to anyone else. It was a tough situation for me though and too many things was revealed to me while he was helping me to fix the probleems and i got the effect of the result just after 48 hours as he assured me and i have my wife back home to me. Dr Isikolo is the best option you can choose to restore love and connection between you and your partner and get back them back to your lives and be happy together forever. You can call/text him via WhatsApp +234-8133261196 or click on his webpage and see more details about his good works. https://isikolo-temple.com