Staying away from home with late stage MND is an absolute mission. Specialist accommodation is massively rare so I stopped looking for accommodation that has everything I need a long time ago. Instead I find places that have enough space and hire or travel with all my equipment. To give you an idea my packing list for this trip had 76 items on it...
Of course I can't physically help to pack any of that, and trying to control too much of the process is a very fast path to massive frustration. However its not easy to let go when so much of that equipment is essential to keeping me alive and cared for, I need to have a lot of trust in my care team and thankfully I do.
Then of course there are the people who will physically push me around the London Marathon. Taking responsibility for my care at the same time. Not only do they have to be physically fit enough to comfortably run 26.2 miles, they have to monitor me and provide any interventions I may need. Distance running is traditionally a solo pursuit, taking on responsibility for me as well is a heroic effort in my view.
Then there are the people who organise the administrative side, the logistics and the publicity. Making sure all my equipment is where it needs to be, everyone has their accreditation, and that we raise some cash for research and care too.
In total that covers around 12 people. The vast majority of whom are unpaid. Those who are paid receive a fraction of what they deserve (that's a whole other blog post) and go above and beyond to help me a
ttempt these ridiculous challenges. Those 12 people are just the tip of the iceberg, my family, friends, trustees and of course all the amazing people who follow and support the charity all have my heartfelt gratitude. I don't really know how I've created this incredible support, or why so many people are willing to give up their time and energy to support me and the charity. It's beyond anything I hoped for or anticipated when we started Stand Against MND and I'm humbled by it.
It gives me the will to carry on, a purpose. Helps me maintain a positive attitude whilst being assaulted by the most brutal disease. Thank you. Every single one of you.
If you feel inspired to help us fund more vital research, you can donate here.
Thank you so much for reading.
Sam x
4363 comments
DO YOU WANT YOUR EX BOYFRIEND, GIRLFRIEND, WIFE OR HUSBAND BACK? I HIGHLY RECOMMEND YOU TO CONTACT DR BOB:
TEXT /WHATSAPP : +2349153314547
EMAIL:foreverspellcast49@gmail.com
Hello am STEPHANIE JANE from the united state, i read some testimony about Dr Bob on how he has helped people in bringing back there ex within 48hours i was just thinking if that was real, And decided to call a lady who made a testimony and also dropped her number, So i called her and ask her about Dr Bob she said Dr Bob is a trustworthy man and he his ready to bring back my lover for me, i was just so happy and a little bit relief that my lover will be back to me soon, Then i decided in contacting Dr Bob which i did, And before i could share him my problem he has already told me what i came for, And he said everything will be okay within 48hours that my lover will be back to my arms, So he said he would be casting the spell and that within 48hours my lover would call me, So i hoped so truly before the 48hours i got a call from a man who has left me for the past 1years saying he is sorry and he wants me back, i was happy and i said i also want him back, Then i traveled to Canada to meet him up, And he apologized for what he has done to me now he proposed to marry me and we are both preparing for our wedding soon, All thanks to the great and World best spell caster.
WhatsApp him directly :+2349153314547
https://www.bark.com/en/us/company/dr-bob-forever-love-spell-cast-2023/b12Yk/?show_reviews=true
https://www.facebook.com/drbobsupernaturalspelltemple/
ARE YOU A VICTIM OF CRYPTOCURRENCY INVESTMENT FRAUD, FOREX OR NFT SCAM? SCHEDULE A MEETING WITH AN ETHICAL HACKER ASAP TO GET STARTED.
Workmanship fee is to be settled AFTER successful recovery.
Let us show you the art of Ethical Hacking….!
ASOREHACKCORP is a private group of financial regulators, private investigation and funds recovery body. We specialize in cases as regards ETHICAL HACKING, CRYPTOCURRENCY, FAKE INVESTMENT SCHEMES and RECOVERY SCAM. We are also experts in CREDIT REPAIR, we analyze what’s impacting your score.
All software tools needed to execute RECOVERIES from start to finish are available in stock.
Kindly NOTE that the available tools does NOT apply to CREDIT FIX.
Be ALERT to FABRICATED reviews and testimonies on the internet, do not get scammed twice.
Contact our team as soon as you can via the email address below to book a mail meeting with an ethical hacker.
asorehackcorp (@) gmail (.) com
Stay Safe out there !⁷
Good day everyone, some statements people make may appear unbelievable, yet they reflect their truth due to their personal experiences. I’m a truck driver and I enjoy playing the lottery, but it’s been 8 years without winning anything significant. I became upset over this and chose to seek help online from anyone skilled in using spells to win the lottery since my grandma had faith in spells and a story about Lord Meduza spells drew my interest. I obtained his contact information, and we discussed all aspects of how he could assist me. In less than 72 hours, Lord Meduza provided me with the lottery numbers I required after he completed the spell for me. I purchased my ticket online, followed the guidance of Lord Meduza, and now my life is fortunate because I won a $42.5 million Jackpot in the lottery I participated in. I’m thankful to Lord Meduza because he truly keeps his promises and I will donate $1 million to the orphanage homes in my town.
Email: Lordmeduzatemple@hotmail.com OR WhatsApp +1 807 907 2687.
Good day everyone, some statements people make may appear unbelievable, yet they reflect their truth due to their personal experiences. I’m a truck driver and I enjoy playing the lottery, but it’s been 8 years without winning anything significant. I became upset over this and chose to seek help online from anyone skilled in using spells to win the lottery since my grandma had faith in spells and a story about Lord Meduza spells drew my interest. I obtained his contact information, and we discussed all aspects of how he could assist me. In less than 72 hours, Lord Meduza provided me with the lottery numbers I required after he completed the spell for me. I purchased my ticket online, followed the guidance of Lord Meduza, and now my life is fortunate because I won a $42.5 million Jackpot in the lottery I participated in. I’m thankful to Lord Meduza because he truly keeps his promises and I will donate $1 million to the orphanage homes in my town.
Email: Lordmeduzatemple@hotmail.com OR WhatsApp +1 807 907 2687.
I am here to give testimony on how this powerful spell caster called PRIEST ZION helped me to fix my relationship. I was heartbroken when my fiance told me he is no longer interested in marrying me because he was having an affair with the other woman where he works. I cried and sobbed every day, until it got so bad that I reached out to the Internet for help, that was when i read a review about the great work of PRIEST ZION, then i contacted him for help to get my lover back, he helped me cast a powerful (reconciliation love spell) and to my greatest surprise after 24 hours of doing the love spell my Fiance came back on his knees begging me to forgive him We are now happily married and all thanks goes to PRIEST ZION Wonders for helping me save my relationship you can contact PRIEST ZION through his WhatsApp.+2349129421831
Email. leading.light.solution1@gmail.com
Read more on his Website
https://leadinglightsoluti.wixsite.com/my-site-1