Staying away from home with late stage MND is an absolute mission. Specialist accommodation is massively rare so I stopped looking for accommodation that has everything I need a long time ago. Instead I find places that have enough space and hire or travel with all my equipment. To give you an idea my packing list for this trip had 76 items on it...
Of course I can't physically help to pack any of that, and trying to control too much of the process is a very fast path to massive frustration. However its not easy to let go when so much of that equipment is essential to keeping me alive and cared for, I need to have a lot of trust in my care team and thankfully I do.
Then of course there are the people who will physically push me around the London Marathon. Taking responsibility for my care at the same time. Not only do they have to be physically fit enough to comfortably run 26.2 miles, they have to monitor me and provide any interventions I may need. Distance running is traditionally a solo pursuit, taking on responsibility for me as well is a heroic effort in my view.
Then there are the people who organise the administrative side, the logistics and the publicity. Making sure all my equipment is where it needs to be, everyone has their accreditation, and that we raise some cash for research and care too.
In total that covers around 12 people. The vast majority of whom are unpaid. Those who are paid receive a fraction of what they deserve (that's a whole other blog post) and go above and beyond to help me a
ttempt these ridiculous challenges. Those 12 people are just the tip of the iceberg, my family, friends, trustees and of course all the amazing people who follow and support the charity all have my heartfelt gratitude. I don't really know how I've created this incredible support, or why so many people are willing to give up their time and energy to support me and the charity. It's beyond anything I hoped for or anticipated when we started Stand Against MND and I'm humbled by it.
It gives me the will to carry on, a purpose. Helps me maintain a positive attitude whilst being assaulted by the most brutal disease. Thank you. Every single one of you.
If you feel inspired to help us fund more vital research, you can donate here.
Thank you so much for reading.
Sam x
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My Bitcoin Recovery Experience with Cloudstrike Cybersecurity
A few weeks ago, I made what I thought was an irreversible mistake — I accidentally sent about $117,000 worth of Bitcoin to the wrong wallet address. It was supposed to be used for a major purchase, but one typo changed everything. The moment I hit “send” and realized what had happened, my heart sank. I honestly felt like my world was falling apart. That money was everything I had.
Like many people, I’d always heard that crypto transactions are final and basically impossible to recover. I started reading forums, asking around, and all I saw were messages telling me there was nothing I could do. It felt hopeless.
Then I came across a company called Cloudstrike Cybersecurity . I’ll admit — I was skeptical at first. It just sounded too good to be true, but I figured I had nothing to lose. I contacted them through their email[Cloudstrikecyber@gmail.com]
To my surprise, they responded quickly and professionally. They asked for all the relevant transaction details — the wallet address I sent the Bitcoin from, the one I sent it to, the transaction ID, and a few other things. I sent it all over, still unsure if anything would come of it.
But within 48 hours, they got back to me with incredible news: they had tracked down the transaction and recovered my funds. I couldn’t believe it. I actually had to reread the email a few times to let it sink in. They guided me step by step and transferred the recovered Bitcoin back to my wallet. I was in shock — and honestly, beyond grateful.
I never thought recovery like this was even possible, but Cloudstrike Cybersecurity proved me wrong. If you ever find yourself in a similar situation, I highly recommend reaching out to them. They truly saved me.