Staying away from home with late stage MND is an absolute mission. Specialist accommodation is massively rare so I stopped looking for accommodation that has everything I need a long time ago. Instead I find places that have enough space and hire or travel with all my equipment. To give you an idea my packing list for this trip had 76 items on it...
Of course I can't physically help to pack any of that, and trying to control too much of the process is a very fast path to massive frustration. However its not easy to let go when so much of that equipment is essential to keeping me alive and cared for, I need to have a lot of trust in my care team and thankfully I do.
Then of course there are the people who will physically push me around the London Marathon. Taking responsibility for my care at the same time. Not only do they have to be physically fit enough to comfortably run 26.2 miles, they have to monitor me and provide any interventions I may need. Distance running is traditionally a solo pursuit, taking on responsibility for me as well is a heroic effort in my view.
Then there are the people who organise the administrative side, the logistics and the publicity. Making sure all my equipment is where it needs to be, everyone has their accreditation, and that we raise some cash for research and care too.
In total that covers around 12 people. The vast majority of whom are unpaid. Those who are paid receive a fraction of what they deserve (that's a whole other blog post) and go above and beyond to help me a
ttempt these ridiculous challenges. Those 12 people are just the tip of the iceberg, my family, friends, trustees and of course all the amazing people who follow and support the charity all have my heartfelt gratitude. I don't really know how I've created this incredible support, or why so many people are willing to give up their time and energy to support me and the charity. It's beyond anything I hoped for or anticipated when we started Stand Against MND and I'm humbled by it.
It gives me the will to carry on, a purpose. Helps me maintain a positive attitude whilst being assaulted by the most brutal disease. Thank you. Every single one of you.
If you feel inspired to help us fund more vital research, you can donate here.
Thank you so much for reading.
Sam x
4363 comments
How to Join the Illuminati brotherhood!!! contact Master Dennis Matrio anywhere in the world you want to be rich, famous, and possess power. contact +35795543364 or email:dennismatrio@gmail.com
info..
BENEFITS GIVEN TO NEW MEMBERS
1. A Cash Reward of $700,000.00
2.A New CAR valued at $50,000.00
3. A new house worth $200,000.00 in your country
4.One Month holiday (fully paid) to your dream tourist destination.
5. Influence your brand/business worldwide
6. Protection from all oppressors
7.A total Lifestyle change
8.Access to Bohemian Grove
9. Booked Appointment with Top Leaders and Top Celebrities in your country.
WARNING DO NOT CONTACT IF YOU ARE NOT INTERESTED.
JOIN THE ILLUMINATI BROTHERHOOD
The Illuminati is a powerful and influential organization made up of multimillionaires, billionaires, and elite individuals who shape global affairs—including the formation of the New World Order. Many world leaders, presidents, prime ministers, royalty, and top executives from Fortune 500 companies in the USA are proud members of this secret society.By joining the Illuminati, you gain access to a network of mysterious forces that can elevate your life beyond imagination. Whether you seek wealth, success in business, fame, or power, the Illuminati can make your dreams a reality.
Don’t hesitate—contact mr dennis matrio via WhatsApp: +35795543364 or Email: dennismatrio@gmail.com
HAIL THE LIGHT!!!
JOIN THE ILLUMINATI BROTHERHOOD
The Illuminati is a powerful and influential organization made up of multimillionaires, billionaires, and elite individuals who shape global affairs—including the formation of the New World Order. Many world leaders, presidents, prime ministers, royalty, and top executives from Fortune 500 companies in the USA are proud members of this secret society.By joining the Illuminati, you gain access to a network of mysterious forces that can elevate your life beyond imagination. Whether you seek wealth, success in business, fame, or power, the Illuminati can make your dreams a reality.
Don’t hesitate—contact mr dennis matrio via WhatsApp: +35795543364 or Email: dennismatrio@gmail.com
HAIL THE LIGHT!!!
Hire Bitcoin Recovery Expert | Best Cryptocurrency Recovery Company | Captain WebGenesis
Thanks to CAPTAIN WEBGENESIS I was able to get back my stolen Bitcoin.
In an unfortunate turn of events, I invested $387,000 into a scheme facilitated by a fraudulent website that ultimately proved to be a scam. Initially presenting itself as a legitimate investment opportunity, the platform employed sophisticated tactics to gain my trust, including seemingly verifiable testimonials and convincing user interfaces. Immediately I discovered I had been scammed, an unsettling realization swept over me, compelling me to seek assistance from trusted sources. In my quest for resolution, I encountered Captain WebGenesis, a seasoned expert in cybersecurity and Crypto recovery solutions. I wholeheartedly appreciate the dedication exhibited by Captain WebGenesis and would like to express my sincere gratitude for his invaluable intervention and assistance in the recovery of my scammed funds.
Website; captainwebgenesis.com
Hire Bitcoin Recovery Expert | Best Cryptocurrency Recovery Company | Captain WebGenesis
Thanks to CAPTAIN WEBGENESIS I was able to get back my stolen Bitcoin.
In an unfortunate turn of events, I invested $387,000 into a scheme facilitated by a fraudulent website that ultimately proved to be a scam. Initially presenting itself as a legitimate investment opportunity, the platform employed sophisticated tactics to gain my trust, including seemingly verifiable testimonials and convincing user interfaces. Immediately I discovered I had been scammed, an unsettling realization swept over me, compelling me to seek assistance from trusted sources. In my quest for resolution, I encountered Captain WebGenesis, a seasoned expert in cybersecurity and Crypto recovery solutions. I wholeheartedly appreciate the dedication exhibited by Captain WebGenesis and would like to express my sincere gratitude for his invaluable intervention and assistance in the recovery of my scammed funds.
Website; captainwebgenesis.com
Hire Bitcoin Recovery Expert | Best Cryptocurrency Recovery Company | Captain WebGenesis
Thanks to CAPTAIN WEBGENESIS I was able to get back my stolen Bitcoin.
In an unfortunate turn of events, I invested $387,000 into a scheme facilitated by a fraudulent website that ultimately proved to be a scam. Initially presenting itself as a legitimate investment opportunity, the platform employed sophisticated tactics to gain my trust, including seemingly verifiable testimonials and convincing user interfaces. Immediately I discovered I had been scammed, an unsettling realization swept over me, compelling me to seek assistance from trusted sources. In my quest for resolution, I encountered Captain WebGenesis, a seasoned expert in cybersecurity and Crypto recovery solutions. I wholeheartedly appreciate the dedication exhibited by Captain WebGenesis and would like to express my sincere gratitude for his invaluable intervention and assistance in the recovery of my scammed funds.
Website; captainwebgenesis.com
Hire Bitcoin Recovery Expert | Best Cryptocurrency Recovery Company | Captain WebGenesis
Thanks to CAPTAIN WEBGENESIS I was able to get back my stolen Bitcoin.
In an unfortunate turn of events, I invested $387,000 into a scheme facilitated by a fraudulent website that ultimately proved to be a scam. Initially presenting itself as a legitimate investment opportunity, the platform employed sophisticated tactics to gain my trust, including seemingly verifiable testimonials and convincing user interfaces. Immediately I discovered I had been scammed, an unsettling realization swept over me, compelling me to seek assistance from trusted sources. In my quest for resolution, I encountered Captain WebGenesis, a seasoned expert in cybersecurity and Crypto recovery solutions. I wholeheartedly appreciate the dedication exhibited by Captain WebGenesis and would like to express my sincere gratitude for his invaluable intervention and assistance in the recovery of my scammed funds.
Website; captainwebgenesis.com
Hire Bitcoin Recovery Expert | Best Cryptocurrency Recovery Company | Captain WebGenesis
Thanks to CAPTAIN WEBGENESIS I was able to get back my stolen Bitcoin.
In an unfortunate turn of events, I invested $387,000 into a scheme facilitated by a fraudulent website that ultimately proved to be a scam. Initially presenting itself as a legitimate investment opportunity, the platform employed sophisticated tactics to gain my trust, including seemingly verifiable testimonials and convincing user interfaces. Immediately I discovered I had been scammed, an unsettling realization swept over me, compelling me to seek assistance from trusted sources. In my quest for resolution, I encountered Captain WebGenesis, a seasoned expert in cybersecurity and Crypto recovery solutions. I wholeheartedly appreciate the dedication exhibited by Captain WebGenesis and would like to express my sincere gratitude for his invaluable intervention and assistance in the recovery of my scammed funds.
Website; captainwebgenesis.com
Hire Bitcoin Recovery Expert | Best Cryptocurrency Recovery Company | Captain WebGenesis
Thanks to CAPTAIN WEBGENESIS I was able to get back my stolen Bitcoin.
In an unfortunate turn of events, I invested $387,000 into a scheme facilitated by a fraudulent website that ultimately proved to be a scam. Initially presenting itself as a legitimate investment opportunity, the platform employed sophisticated tactics to gain my trust, including seemingly verifiable testimonials and convincing user interfaces. Immediately I discovered I had been scammed, an unsettling realization swept over me, compelling me to seek assistance from trusted sources. In my quest for resolution, I encountered Captain WebGenesis, a seasoned expert in cybersecurity and Crypto recovery solutions. I wholeheartedly appreciate the dedication exhibited by Captain WebGenesis and would like to express my sincere gratitude for his invaluable intervention and assistance in the recovery of my scammed funds.
Website; captainwebgenesis.com