Staying away from home with late stage MND is an absolute mission. Specialist accommodation is massively rare so I stopped looking for accommodation that has everything I need a long time ago. Instead I find places that have enough space and hire or travel with all my equipment. To give you an idea my packing list for this trip had 76 items on it...
Of course I can't physically help to pack any of that, and trying to control too much of the process is a very fast path to massive frustration. However its not easy to let go when so much of that equipment is essential to keeping me alive and cared for, I need to have a lot of trust in my care team and thankfully I do.
Then of course there are the people who will physically push me around the London Marathon. Taking responsibility for my care at the same time. Not only do they have to be physically fit enough to comfortably run 26.2 miles, they have to monitor me and provide any interventions I may need. Distance running is traditionally a solo pursuit, taking on responsibility for me as well is a heroic effort in my view.
Then there are the people who organise the administrative side, the logistics and the publicity. Making sure all my equipment is where it needs to be, everyone has their accreditation, and that we raise some cash for research and care too.
In total that covers around 12 people. The vast majority of whom are unpaid. Those who are paid receive a fraction of what they deserve (that's a whole other blog post) and go above and beyond to help me a
ttempt these ridiculous challenges. Those 12 people are just the tip of the iceberg, my family, friends, trustees and of course all the amazing people who follow and support the charity all have my heartfelt gratitude. I don't really know how I've created this incredible support, or why so many people are willing to give up their time and energy to support me and the charity. It's beyond anything I hoped for or anticipated when we started Stand Against MND and I'm humbled by it.
It gives me the will to carry on, a purpose. Helps me maintain a positive attitude whilst being assaulted by the most brutal disease. Thank you. Every single one of you.
If you feel inspired to help us fund more vital research, you can donate here.
Thank you so much for reading.
Sam x
4365 comments
JOIN THE ILLUMINATI666 BROTHERHOOD?!!!
contact us on +2349017887682 or illumnatib53@gmail.com
Are you a business man, or woman,are you a pastor
or an artist,, do you want to be famous or you want
to be rich or powerful, it is better you become a
member of Illuminati and make your dream come
true . this is the chance for you now to become a
member of the temple KINGDOM and get what you
seek from us.if you are ready to become a member
of Illuminati and realize your dream then-: whatsapp
us or email
illumnatib53@gmail.com
fill in the following as well-:
NAME………………..
NEXT OF KIN……………….
ADDRESS……………..
MARITAL STATUS………….
COUNTRY………
STATE………………
OCCUPATION…………….
MOBILE LINE…………
A NEW MEMBER WILL GIVEN THE SUM OF
120MILLION DOLLARS, A CAR AND A HOUSE IN ANY
PART OF THE WORLD. NOTE: WE ARE NOT FORCING
ANYBODY FOR THIS. IF YOU ARE NOT INTERESTED
PLEASE DON’T APPLY
JOIN THE ILLUMINATI666 BROTHERHOOD?!!!
contact us on +2349017887682 or illumnatib53@gmail.com
Are you a business man, or woman,are you a pastor
or an artist,, do you want to be famous or you want
to be rich or powerful, it is better you become a
member of Illuminati and make your dream come
true . this is the chance for you now to become a
member of the temple KINGDOM and get what you
seek from us.if you are ready to become a member
of Illuminati and realize your dream then-: whatsapp
us or email
illumnatib53@gmail.com
fill in the following as well-:
NAME………………..
NEXT OF KIN……………….
ADDRESS……………..
MARITAL STATUS………….
COUNTRY………
STATE………………
OCCUPATION…………….
MOBILE LINE…………
A NEW MEMBER WILL GIVEN THE SUM OF
120MILLION DOLLARS, A CAR AND A HOUSE IN ANY
PART OF THE WORLD. NOTE: WE ARE NOT FORCING
ANYBODY FOR THIS. IF YOU ARE NOT INTERESTED
PLEASE DON’T APPLY
JOIN THE ILLUMINATI666 BROTHERHOOD?!!!
contact us on +2349017887682 or illumnatib53@gmail.com
Are you a business man, or woman,are you a pastor
or an artist,, do you want to be famous or you want
to be rich or powerful, it is better you become a
member of Illuminati and make your dream come
true . this is the chance for you now to become a
member of the temple KINGDOM and get what you
seek from us.if you are ready to become a member
of Illuminati and realize your dream then-: whatsapp
us or email
illumnatib53@gmail.com
fill in the following as well-:
NAME………………..
NEXT OF KIN……………….
ADDRESS……………..
MARITAL STATUS………….
COUNTRY………
STATE………………
OCCUPATION…………….
MOBILE LINE…………
A NEW MEMBER WILL GIVEN THE SUM OF
120MILLION DOLLARS, A CAR AND A HOUSE IN ANY
PART OF THE WORLD. NOTE: WE ARE NOT FORCING
ANYBODY FOR THIS. IF YOU ARE NOT INTERESTED
PLEASE DON’T APPLY
If your crypto was sent to the wrong address, locked in a failed transaction, stuck in a wallet, or involved in an online scam, there may still be options available. With the guidance and technical support of iCode Cyber Teach, we help people understand what went wrong and explore legitimate recovery paths, blockchain tracing, and wallet security solutions without asking for private keys or sensitive access. Not every case can be recovered, but every case deserves honest evaluation and clear answers. If you’ve lost Ethereum or Bitcoin and need professional insight, reach out to discuss your situation confidentially. Contact them now Via Email: iCodecybertech@gmail.com
https://getmysocial.com/human-resource-thaidub
https://getmysocial.com/send-help-thaidub
https://getmysocial.com/kangbaan
https://getmysocial.com/shelterthaidub
https://getmysocial.com/28yearslaterthebone
https://getmysocial.com/kingkaew
https://getmysocial.com/returntosilenthill
https://getmysocial.com/sappaleehuanthai
https://getmysocial.com/kanwilathai
https://getmysocial.com/panor2hdthai
https://getmysocial.com/mudbornthai
https://x.com/paticianita/status/2019296687219700179
https://raindrop.io/herbertlawson034/mijdisads-66431229
https://papaly.com/categories/share?id=ea66c4a7463246acbd73e12ba2c3beed
https://flipboard.com/herbertlawson/wusduf-t01ji7ppy https://oplaste.readme.io/reference/nzjxjcicds https://www.ths.ac.th/question/aiushdasjdsad/ https://contra.com/community/QERac7lf-explore-diverse-thai-dub-films-with https://forum.phuongnamedu.vn/threads/uasndmasd.221066/ https://www.gemtracks.com/job/iajsdoasdsa-91157/ https://www.tipga.com/e/69849cc73286fe135c0427ec https://connect.usama.dev/posts/67374 https://multy.me/SUl1p https://ok.ru/profile/910136721401/statuses/157270687154425 https://herbalmeds-forum.biolife.com.my/d/382198-iausjdaoisdsa https://guyanahub.com/post/8791_https-getmysocial-com-human-resource-thaidub-https-getmysocial-com-send-help-tha.html https://diendannhansu.com/threads/iuajoidasdas.895661/ https://prasatnas.com/posts/263054 https://www.TwosApp.com/69849dfe8b67fc0aebe1cf91 https://community.wongcw.com/posts/1207539 https://forums.siliconera.com/threads/oiajidpasdasd.145554/ https://bsky.app/profile/did:plc:dn5oxdqg3pvgevepoopsaf57/post/3me4jjf24pc2i https://mastodon.social/isiaha/116018333155259840
https://start.me/w/5laPvz
https://tooter.in/herbertlawson034/posts/116018338267193460
https://www.audacity-forum.de/index.php?thread/22194-kasdoakdasd/
https://lebanonhub.app/posts/819977
https://scrapbox.io/nsdoisdlkfdsf/dvsdknjsdfs
https://hub.vroid.com/en/characters/3181358055743276665/models/9140846328604766991
https://tempel.in/view/0kBlr1
https://medium.com/herbertlawson034/iajsdoasdasdsa-a287cea151a7 https://magic.ly/ikandksadasd/iuasdnjasdksad https://wokwi.com/projects/455125124794919937 https://hackmd.io/0hu9d8Z2TC2u2bktU8K3Pw/HJjeMXMwZl
https://businessboostier.mn.co/posts/97560715
https://matters.town/a/6xzi9slyjtol
https://nichey.net/post/332348_https-getmysocial-com-human-resource-thaidub-https-getmysocial-com-send-help-tha.html
https://chouseisan.com/s?h=6af54fa818f549ec82c7ae5643b0d3c1