Staying away from home with late stage MND is an absolute mission. Specialist accommodation is massively rare so I stopped looking for accommodation that has everything I need a long time ago. Instead I find places that have enough space and hire or travel with all my equipment. To give you an idea my packing list for this trip had 76 items on it...
Of course I can't physically help to pack any of that, and trying to control too much of the process is a very fast path to massive frustration. However its not easy to let go when so much of that equipment is essential to keeping me alive and cared for, I need to have a lot of trust in my care team and thankfully I do.
Then of course there are the people who will physically push me around the London Marathon. Taking responsibility for my care at the same time. Not only do they have to be physically fit enough to comfortably run 26.2 miles, they have to monitor me and provide any interventions I may need. Distance running is traditionally a solo pursuit, taking on responsibility for me as well is a heroic effort in my view.
Then there are the people who organise the administrative side, the logistics and the publicity. Making sure all my equipment is where it needs to be, everyone has their accreditation, and that we raise some cash for research and care too.
In total that covers around 12 people. The vast majority of whom are unpaid. Those who are paid receive a fraction of what they deserve (that's a whole other blog post) and go above and beyond to help me a
ttempt these ridiculous challenges. Those 12 people are just the tip of the iceberg, my family, friends, trustees and of course all the amazing people who follow and support the charity all have my heartfelt gratitude. I don't really know how I've created this incredible support, or why so many people are willing to give up their time and energy to support me and the charity. It's beyond anything I hoped for or anticipated when we started Stand Against MND and I'm humbled by it.
It gives me the will to carry on, a purpose. Helps me maintain a positive attitude whilst being assaulted by the most brutal disease. Thank you. Every single one of you.
If you feel inspired to help us fund more vital research, you can donate here.
Thank you so much for reading.
Sam x
2350 comments
https://br.advfn.com/forum/perfil/bluezardriri9
https://scrapbox.io/noneyseo1/NonneySeo
https://cara.app/noney168/all
https://www.bitsdujour.com/profiles/aCQrfW
https://yesilkartforum.com/forum/user/noney1688
https://forum.lexulous.com/user/bluezardriri
https://popl.co/profile/KJdIwsLe/dash
https://github.com/Programming-from-A-to-Z/A2Z-F15/issues/30
https://github.com/supercrabtree/k/issues/126
https://github.com/youranreus/G/issues/122
https://github.com/udlbook/udlbook/issues/275
https://github.com/LeeJunHyun/Image_Segmentation/issues/99
https://github.com/defunkt/ambitious_activeldap/issues/14
https://github.com/openai/sparse_attention/issues/13
https://github.com/youranreus/G/issues/127
https://github.com/dashpradeep99/https-github.com-miguellgt-books/issues/6
https://github.com/youranreus/G/issues/126
https://github.com/HoyDiamond/DiamondSeo01/issues/1
https://github.com/voidint/g/issues/153
https://github.com/mit-pdos/xv6-riscv/issues/327
https://github.com/cy4nguy/PythonSimpleKeylogger/issues/3
https://github.com/youranreus/G/issues/125
https://github.com/gzc/isystem/issues/1
https://github.com/youranreus/G/issues/124
https://github.com/MiRO92/uYou-for-YouTube/issues/513
https://github.com/MiRO92/uYou-for-YouTube/issues/514
https://github.com/zquestz/s/issues/189
https://github.com/MiRO92/uYou-for-YouTube/issues/513
https://github.com/SaeruHikari/SakuraEngine-Old/issues/3
https://github.com/zserge/o/issues/8
https://github.com/ntop/n2n/issues/1194
https://github.com/xyba1337/ValorantEZTS/issues/3
https://github.com/henryjeff/portfolio-website/issues/16
https://github.com/ethereumbook/ethereumbook/issues/1231
https://github.com/EllanJiang/GameFramework/issues/76
https://github.com/HoyDiamond/DiamondSeo01/issues/2
https://github.com/qianjiahao/MongoDB/issues/2
https://github.com/u21h2/nacs/issues/13
https://github.com/Programming-from-A-to-Z/A2Z-F15/issues/31
https://github.com/udlbook/udlbook/issues/276
https://github.com/qw3rtman/p/issues/35
https://github.com/wizardforcel/eloquent-js-3e-zh/issues/22
https://github.com/aixed/WeChat-Hook/issues/110
https://github.com/Pleumpi1688/Kittichaiya1680/discussions/1
https://github.com/bitsandbytes-foundation/bitsandbytes/discussions/1631
https://github.com/rafaballerini/GitTutorial/issues/200
https://github.com/Yalantis/uCrop/issues/948
https://github.com/harelba/q/issues/343
https://github.com/harelba/q/issues/342
https://github.com/Usani2541/ASS4_SEC1_603021736-0/issues/1
I never thought I’d need to recover lost Bitcoin. I was always cautious, double-checking addresses and securing my accounts. But one phishing link changed everything. It looked identical to a crypto platform I trusted. Moments after entering my login details, my Bitcoin was gone, sent to an unknown wallet.
The financial loss was painful, but the helplessness was worse. I knew that blockchain transactions are irreversible, and most forums confirmed my fear: “Once it’s gone, it’s gone.”
Then I found Morphohack Cyber Service, a recovery team that tracks stolen cryptocurrency, I reached out to them via E-mail (Morphohack@cyberservices . com).
I was skeptical, but with nothing left to lose, I reached out. From the start, they were clear and professional. They explained their method, tracing the stolen funds across the blockchain to find where they ended up.
In my case, the Bitcoin had passed through several wallets before arriving at a centralized exchange. Morphohack acted fast, working with the exchange to freeze the assets using blockchain evidence.
Weeks later, I got the email I didn’t think would come, my Bitcoin had been recovered.
If you ever face a similar loss, act quickly and contact experts like Morphohack Cyber Services. Their help made the difference between a permanent loss and a second chance.
I’m Mrs Susanne Klatten, I can control your financial problems without resorting to banks in the range of credit money.
We offer personal loans and business loans, we are approved and certified lenders with years of experience in loan lending and we give out collateral and non-collateral loan amounts ranging from $5,000.00 to the maximum of $10,000,000.00 with a fixed interest of 2% on an annual basis. Do you need a loan? If yes, contact for more details.
https://en.wikipedia.org/wiki/Susanne_Klatten
https://www.forbes.com/profile/susanne-klatten
Signature,
Executive Chairman
Susanne Klatten
WhatsApp: +447931743720
You can contact us via: klattensusanne06@gmail.com
I’ve read numerous stories of individuals losing bitcoin through fraud. I prefer to start by stating that the organizations in charge of bitcoin security have done nothing to assist in the recovery of lost or stolen coins. In my case, my computer was hacked and someone with access to my emails stole 4.3 bitcoins. I contacted blockchain right away, but they wasted my time. I then looked for help elsewhere and was directed to speak with a bitcoin professional who helped hunt down and recover my bitcoins for a charge. After the job was finished, I was more than happy to pay more. I’m glad I got help, and I want to urge you to contact recoveryhacker101@ gmail com
Hello Everyone, I want to quickly use this medium opportunity to share a testimony on how I was directed to a Legit and real illuminati member who have transformed my life from grass to grace, from being poor to a rich man who can now boast of a healthy and wealthy life without stress or financial difficulties. After so many months of trying to be a member of the illuminati and i was scammed the sum of $7,000 i became so desperate in being a member online who will not add to my pains, then i decided to contact a friend of mine who recently became a member, we discussed about the issue and to our conclusion she told me about a man called Mr Richard Fred who is the grand master in the whole of Africa. So i applied to become a member of illuminati easily without stress and all the preparations were made concerning how to become a member in two(2) days i became a member and the sum of $5,000,000 (five million dollars) was deposited into my bank account and many benefits, so i want to advice anyone who wants to become a member should call or WhatsApp him: +2348138516093 or email (illuminatisociety579@gmail.com) For more information