With a Little Help

April 19, 2024

It's now Friday afternoon and I'm settled into my London accommodation. Members of the team are running around London getting the final pieces of admin done ahead of Sunday. Everything seems to be going to plan and one of the only things left to do is get round the course!

Staying away from home with late stage MND is an absolute mission. Specialist accommodation is massively rare so I stopped looking for accommodation that has everything I need a long time ago. Instead I find places that have enough space and hire or travel with all my equipment. To give you an idea my packing list for this trip had 76 items on it...

Of course I can't physically help to pack any of that, and trying to control too much of the process is a very fast path to massive frustration. However its not easy to let go when so much of that equipment is essential to keeping me alive and cared for, I need to have a lot of trust in my care team and thankfully I do.

Then of course there are the people who will physically push me around the London Marathon. Taking responsibility for my care at the same time. Not only do they have to be physically fit enough to comfortably run 26.2 miles, they have to monitor me and provide any interventions I may need. Distance running is traditionally a solo pursuit, taking on responsibility for me as well is a heroic effort in my view.

Then there are the people who organise the administrative side, the logistics and the publicity. Making sure all my equipment is where it needs to be, everyone has their accreditation, and that we raise some cash for research and care too.

In total that covers around 12 people. The vast majority of whom are unpaid. Those who are paid receive a fraction of what they deserve (that's a whole other blog post) and go above and beyond to help me a

ttempt these ridiculous challenges. Those 12 people are just the tip of the iceberg, my family, friends, trustees and of course all the amazing people who follow and support the charity all have my heartfelt gratitude.

I don't really know how I've created this incredible support, or why so many people are willing to give up their time and energy to support me and the charity. It's beyond anything I hoped for or anticipated when we started Stand Against MND and I'm humbled by it.

It gives me the will to carry on, a purpose. Helps me maintain a positive attitude whilst being assaulted by the most brutal disease. Thank you. Every single one of you.

If you feel inspired to help us fund more vital research, you can donate here.

Thank you so much for reading.

Sam x

Back to blog

3451 comments

https://scrapbox.io/DIAMOND16/Diamond168
https://diamondlnwpg168.com/
https://github.com/Programming-from-A-to-Z/A2Z-F15/issues/30
https://github.com/defunkt/ambitious_activeldap/issues/14
https://github.com/openai/sparse_attention/issues/13
https://github.com/dashpradeep99/https-github.com-miguellgt-books/issues/6
https://github.com/HoyDiamond/DiamondSeo01/issues/1
https://github.com/cy4nguy/PythonSimpleKeylogger/issues/3
https://github.com/gzc/isystem/issues/1
https://github.com/SaeruHikari/SakuraEngine-Old/issues/3
https://github.com/xyba1337/ValorantEZTS/issues/3
https://github.com/henryjeff/portfolio-website/issues/16
https://github.com/EllanJiang/GameFramework/issues/76
https://github.com/HoyDiamond/DiamondSeo01/issues/2
https://github.com/qianjiahao/MongoDB/issues/2
https://github.com/u21h2/nacs/issues/13
https://github.com/Programming-from-A-to-Z/A2Z-F15/issues/31
https://www.paiklangna.com/
https://github.com/rafaballerini/GitTutorial/issues/200
https://github.com/Yalantis/uCrop/issues/948

Two months ago, I had been a victim of a bitcoin scam, a con artist gained access to my cash app account and stole $267,700. I was really devastated. I tried on my own to see if I could get it back. I went online read articles on how I can recover my bitcoin back, it did not go well. I went to YouTube to see if someone talked about how one can recover their finds but that too did not go well. Within my research, I came across testimonials about RecoveryHacker101 on how they help and have helped a lot of people recover their bitcoins and how a lot of people have also refereed them to others. I immediately got in touch with them and explained my situation to them and assured me they will help get my Bitcoin back. I decided to give them a try and they definitely did a great job; all my money was recovered back into my new wallet account in a few days. I’m writing this to inform anyone who has had similar issues to open a case with RecoveryHacker101 via email on recoveryhacker101(at)gmail(dot)com. I luckily escaped what ought to have destroyed me financially, you too can escape it.

Item added to your cart

With a Little Help

3451 comments

Leave a comment