Life Is a Roller Coaster... Part One September 30, 2024Hello all. It’s been almost exactly four weeks since I last updated you, and what a four weeks it’s been! Ronan would be proud. I’ve produced enough green phlegm to...
Read All About It!! September 1, 2024It’s been a little while since my last blog, I would love to write more but there have been so many things going on that it has been difficult to...
I'm still standing... July 28, 2024It's not down to me either: YOU are the ones who like, share, fundraise and talk about the charity and my story. Without you none of this would have been...
A Quarter of a Million... June 17, 2024 It's been quite an adventure since sleeping in a dining room...
Nothing Else Matters... June 3, 2024Life has a way of giving you a massive reality check at times though doesn't it?
New Tricks May 13, 2024I can completely understand how this disease devastates patients and their families, which is why it needs to be changed. Through science. Through research. By us.