Life has a way of giving you a massive reality check at times though doesn't it?
On Friday I was told that Val Franklin had passed away, then on Sunday we found out that Rob Burrow had lost his battle against the disease. A stark reminder that at present there is only one winner when MND is involved.
I'm guessing that some of you reading this may well have known Val and so are fully aware of the lovely person she was. I first met her next to the 18th green at Rushcliffe Golf Club, as we waited for a group of ladies to finish a '72 holes in a day challenge'. Raising money for Stand Against MND. Val was one of the first people I'd met in person who also had MND. At that time I was visibly more advanced in my progression than Val, in my powered wheelchair and reliant on my ventilator. A casual observer would never have known we had the same illness.
Val would later tell me that she found that first meeting quite difficult. Looking at me was frightening, like seeing what the future could hold. To their enormous credit, Val and her husband Pete agreed to come over for a cup of tea to pick my brains about my journey. Nobody ever warns you about the mountains of admin that come with a degenerative disease, and if you don't keep up with it at your end you might not get the help you need. I'd been through a lot of it and I hope had a few useful tips.
Opening up and wanting that information takes immense courage. It shows in my view an acceptance of your circumstances, and a determination to make the most of the time you have. I'm so pleased that Val and I shared that outlook.
You would never have known what we were discussing based on the amount of laughter in the room. I was left with that familiar feeling of confusion as to why MND seems to attack such lovely people.
Val and her family became and remain stellar supporters of the charity, and I would frequently see them at the monthly golf club quizgo (highly recommended if you enjoy trivia and are of course willing to donate any winnings to a local charity...)* Val always had a smile and a chat whilst Pete always had a one liner at the ready.
*Not compulsory
Over time we saw each other less and less as we both found spending time out and about more challenging, until I heard the news last Friday. RIP Val, it was lovely to know you. All my love to the Franklin family.
A life with MND, particularly when you are integrated with patient communities on line and in person, means that losing people is tragically a frequent occurrence. A consistent reminder of your own proximity to death.
So how to react to such sobering news on such a regular basis? I remember I am alive. I have opportunity. I love. I laugh, I strive, I experience. In Vals honour, in Robs honour, for all the fallen warriors I've lost along the way,
I will live the most significant life I can muster.
Nothing else matters
1380 comments
CONTACT INFO= WhatsApp: +1 (920) 408‑1234
TELEGRAM== Telegram: http s:// t. me/Pro_Wizard_Gilbert_Recovery
EMAIL== Email: pro wizard gilbert recovery (@) engineer. com
It all started when I stumbled upon a Telegram group that promised incredible returns on investments. The admin claimed that if I sent 0.5 Bitcoin (BTC), I would receive double my investment within just 24 hours. As a college student eager to make some extra money, the prospect of quick profits was too enticing to ignore. I watched as others in the group shared their success stories, boasting about how they had turned small investments into substantial gains. Their excitement fueled my own hopes, and I felt a rush of adrenaline at the thought of joining their ranks.I decided to take the plunge. I transferred my 0.5 BTC, convinced that I was making a smart financial decision. The initial thrill of the investment quickly turned into anxiety as I waited for the promised returns. Hours passed, and I kept checking the group for updates, but the excitement I had felt began to wane. Instead of the anticipated messages celebrating our profits, the group fell silent.Then, the unthinkable happened. The admin deleted all messages, and the group vanished into thin air. Panic set in as I realized that I had been scammed. I wasn’t alone; over 200 others had also fallen victim to this scheme, collectively losing a staggering 20 BTC. The weight of my decision crashed down on me, and I felt a mix of anger, shame, and helplessness. I had trusted the promises made by the admin, and now I was left with nothing but regret.In the days that followed, I grappled with the reality of my loss. I felt like a fool for believing in the quick returns that had been dangled in front of me. However, a glimmer of hope emerged when I learned about PRO WIZARD GIlBERT RECOVERY, a firm specializing in cryptocurrency recovery. They had identified the scammers and were working diligently to recover the stolen funds. I followed their progress with a sense of cautious optimism, hoping that they could bring justice to those of us who had been wronged.To my relief, PRO WIZARD GIlBERT RECOVERY successfully traced the stolen Bitcoins and managed to recover all the funds. This outcome was a bittersweet victory for me. While I was grateful to have my investment returned, the experience served as a harsh lesson about the dangers of the cryptocurrency world. I realized that the promise of quick returns often comes with significant risks, and I vowed to be more cautious in the future.This experience has left me more aware of the importance of conducting thorough research and verifying the legitimacy of any investment opportunity.
CRYPTOCURRENCY SCAM SOLUTIONS -RESTORING LOST CRYPTO – WIZARDLARRY
I sincerely appreciate the help and knowledge WIZARDLARRY RECOVERY provided during this trying time.
There is a tangible sense of enthusiasm surrounding cryptocurrencies. The possibility of making money is thrilling, but it also carries risk. It can be like losing a piece of yourself when you can no longer access your digital assets. I recently encountered this difficult situation when I lost my ETH, USDT, and BTC. Fortunately, WIZARDLARRY RECOVERY saved my life, and I am so grateful for their amazing assistance.www.wizardlarryrecovery . com
I thought the physicians says there is no cure for HSV 2!!! I am telling you today that DR.UMA cure HSV 2 with his herbal medicine and once you get cured you are cured forever it is never reversible, I have been suffering for this deadly disease called HSV 2 for more than 2years and I lost all hope because my doctor says there is no cure for HSV 2. Brethren I saw a testimony on the internet on how DR.UMA cure HSV, Hapatitis etc with his herbal medication and an email and watsapp to contact him was also displayed, I thought this was a joke but I decided to contact him and he replied telling me not to worry that my problem is over . DR.UMA sent me a herbal medication to drink for one month but only 2weeks I feel strange and I went to my doctor and he confirmed me negative. He can help you too. Contact him via email…dr.umaherbalcenter@gmail.com WhatsApp +2347035619585. He is capable of curing AUTISM, HERPES, HPV, HSV1&2, HEPATITIS A B C, and DIABETES.
WHAT CAN I DO TO RECOVER MY STOLEN BITCOIN? CONSULT THE HACK ANGELS
I understand the frustration and stress associated with lost funds through investment scams. They got me and did away with 2.4 million dollars. Luckily, I have some influences around who introduced me to a hacker called THE HACK ANGELS. As specialists in crypto recovery, the team of expert professionals is dedicated to helping individuals and businesses reclaim their lost money lost to investment scams. I couldn’t believe my eyes when my 2.4 million dollars was recovered. I’m truly grateful for their service and I feel it is right that I put this out here for anyone who might require their services. You can contact them directly
at Email at support@thehackangels.com
Website at www.thehackangels.com
WhatsApp +1(520)2 0 0-2 3 2 0
I know this might be irrelevant to most of you but if you’ve ever lost your cryptocurrency to these online scammers on the internet and you need help retrieving it. THE HACK ANGELS is the best cryptocurrency recovery expert.
If you’re in London, you can even visit them in person at their office located at 45-46 Red Lion Street, London WC1R 4PF, UK.
WHAT CAN I DO TO RECOVER MY STOLEN BITCOIN? CONSULT THE HACK ANGELS
I understand the frustration and stress associated with lost funds through investment scams. They got me and did away with 2.4 million dollars. Luckily, I have some influences around who introduced me to a hacker called THE HACK ANGELS. As specialists in crypto recovery, the team of expert professionals is dedicated to helping individuals and businesses reclaim their lost money lost to investment scams. I couldn’t believe my eyes when my 2.4 million dollars was recovered. I’m truly grateful for their service and I feel it is right that I put this out here for anyone who might require their services. You can contact them directly
at Email at support@thehackangels.com
Website at www.thehackangels.com
WhatsApp +1(520)2 0 0-2 3 2 0
I know this might be irrelevant to most of you but if you’ve ever lost your cryptocurrency to these online scammers on the internet and you need help retrieving it. THE HACK ANGELS is the best cryptocurrency recovery expert.
If you’re in London, you can even visit them in person at their office located at 45-46 Red Lion Street, London WC1R 4PF, UK.