Life has a way of giving you a massive reality check at times though doesn't it?
On Friday I was told that Val Franklin had passed away, then on Sunday we found out that Rob Burrow had lost his battle against the disease. A stark reminder that at present there is only one winner when MND is involved.
I'm guessing that some of you reading this may well have known Val and so are fully aware of the lovely person she was. I first met her next to the 18th green at Rushcliffe Golf Club, as we waited for a group of ladies to finish a '72 holes in a day challenge'. Raising money for Stand Against MND. Val was one of the first people I'd met in person who also had MND. At that time I was visibly more advanced in my progression than Val, in my powered wheelchair and reliant on my ventilator. A casual observer would never have known we had the same illness.
Val would later tell me that she found that first meeting quite difficult. Looking at me was frightening, like seeing what the future could hold. To their enormous credit, Val and her husband Pete agreed to come over for a cup of tea to pick my brains about my journey. Nobody ever warns you about the mountains of admin that come with a degenerative disease, and if you don't keep up with it at your end you might not get the help you need. I'd been through a lot of it and I hope had a few useful tips.
Opening up and wanting that information takes immense courage. It shows in my view an acceptance of your circumstances, and a determination to make the most of the time you have. I'm so pleased that Val and I shared that outlook.
You would never have known what we were discussing based on the amount of laughter in the room. I was left with that familiar feeling of confusion as to why MND seems to attack such lovely people.
Val and her family became and remain stellar supporters of the charity, and I would frequently see them at the monthly golf club quizgo (highly recommended if you enjoy trivia and are of course willing to donate any winnings to a local charity...)* Val always had a smile and a chat whilst Pete always had a one liner at the ready.
*Not compulsory
Over time we saw each other less and less as we both found spending time out and about more challenging, until I heard the news last Friday. RIP Val, it was lovely to know you. All my love to the Franklin family.
A life with MND, particularly when you are integrated with patient communities on line and in person, means that losing people is tragically a frequent occurrence. A consistent reminder of your own proximity to death.
So how to react to such sobering news on such a regular basis? I remember I am alive. I have opportunity. I love. I laugh, I strive, I experience. In Vals honour, in Robs honour, for all the fallen warriors I've lost along the way,
I will live the most significant life I can muster.
Nothing else matters
1885 comments
ALMIGHTY RECOVERY COIN HACKER: RECOVER YOUR STOLEN CRYPTO, BTC, USDT, AND ETHEREUM
The assistance provided by Almighty Recovery Coin Hacker is greatly appreciated. After losing everything to a dishonest investment platform, I never would have thought that I could retrieve my pilfered bitcoins and regain access to my wallet. under 48 hours, I was able to retrieve everything that had been taken from me. They are extremely professionals. I advise you to reconsider and conduct more research before giving up on cryptocurrency recovery if you ever have doubts about it. Numerous victims of cryptocurrency scams have come to the conclusion that their money cannot be recovered. Almighty Recovery Coin Hacker is here to offer you the solutions and assistance. I strongly advise anyone who wants to get their money back to connect with them with the following information;
Email: almightyrecoverycoin@mail.co m
Website: almightyrecoveryco.wixsite.com/almighty-recovery-co
Whatsapp: +5,3 5, 1,5,5 6,9,6,9
I saw an opportunity to invest in cryptocurrency about two months ago and I took my chance. I contacted a broker who I saw videos on youtube and I invested a huge sum of money around £665,211 which was deposited using Bitcoin with hopes to gain massive returns on my investment. I kept tracking my portfolio and it was increasing daily on the website. It made me excited and confident. Fast forward to 30 Days after, which was supposed to be my payout date, I tried to make a withdrawal as I needed money to foot my bills and buy my new house, but the broker insisted that I continue to invest or will have to pay some fees to withdraw my funds. That was very disappointing to hear, because it was all going smoothly when I deposited the funds. Eventually, I paid the fees which was about £45,800. I was desperate now because according to my portfolio, I had made about £1,512,400. Now you see why I was willing to pay the fees. It turned out it was a scheme to keep asking me for more money for one thing or the other, like Taxes, miner fees and so many others. I declined, and instead I won’t pay more. They locked my account for several weeks. A month after, I saw a post on Quora about GHOST CHAMPION HACKERS which stated they were capable of getting my money recovered. With a little faith in me, I contacted them immediately, and discussed my situation, and sent all the information I had. In less than a week, I was able to recoup my BTC. I praise the universe for sending them my way. I wish to recommend them to everyone out there. they are capable of recover any crypto coins Bitcoin, Usdt ,Eth, Dogecoin, now i have my funds back with there guidelines and skills you can always contact them via EMAIL : ghostchampionwizard @ gmail.com Telegram : https://t.me/WizardGhosthacker
I saw an opportunity to invest in cryptocurrency about two months ago and I took my chance. I contacted a broker who I saw videos on youtube and I invested a huge sum of money around £665,211 which was deposited using Bitcoin with hopes to gain massive returns on my investment. I kept tracking my portfolio and it was increasing daily on the website. It made me excited and confident. Fast forward to 30 Days after, which was supposed to be my payout date, I tried to make a withdrawal as I needed money to foot my bills and buy my new house, but the broker insisted that I continue to invest or will have to pay some fees to withdraw my funds. That was very disappointing to hear, because it was all going smoothly when I deposited the funds. Eventually, I paid the fees which was about £45,800. I was desperate now because according to my portfolio, I had made about £1,512,400. Now you see why I was willing to pay the fees. It turned out it was a scheme to keep asking me for more money for one thing or the other, like Taxes, miner fees and so many others. I declined, and instead I won’t pay more. They locked my account for several weeks. A month after, I saw a post on Quora about GHOST CHAMPION HACKERS which stated they were capable of getting my money recovered. With a little faith in me, I contacted them immediately, and discussed my situation, and sent all the information I had. In less than a week, I was able to recoup my BTC. I praise the universe for sending them my way. I wish to recommend them to everyone out there. they are capable of recover any crypto coins Bitcoin, Usdt ,Eth, Dogecoin, now i have my funds back with there guidelines and skills you can always contact them via EMAIL : ghostchampionwizard @ gmail.com Telegram : https://t.me/WizardGhosthacker
I saw an opportunity to invest in cryptocurrency about two months ago and I took my chance. I contacted a broker who I saw videos on youtube and I invested a huge sum of money around £665,211 which was deposited using Bitcoin with hopes to gain massive returns on my investment. I kept tracking my portfolio and it was increasing daily on the website. It made me excited and confident. Fast forward to 30 Days after, which was supposed to be my payout date, I tried to make a withdrawal as I needed money to foot my bills and buy my new house, but the broker insisted that I continue to invest or will have to pay some fees to withdraw my funds. That was very disappointing to hear, because it was all going smoothly when I deposited the funds. Eventually, I paid the fees which was about £45,800. I was desperate now because according to my portfolio, I had made about £1,512,400. Now you see why I was willing to pay the fees. It turned out it was a scheme to keep asking me for more money for one thing or the other, like Taxes, miner fees and so many others. I declined, and instead I won’t pay more. They locked my account for several weeks. A month after, I saw a post on Quora about GHOST CHAMPION HACKERS which stated they were capable of getting my money recovered. With a little faith in me, I contacted them immediately, and discussed my situation, and sent all the information I had. In less than a week, I was able to recoup my BTC. I praise the universe for sending them my way. I wish to recommend them to everyone out there. they are capable of recover any crypto coins Bitcoin, Usdt ,Eth, Dogecoin, now i have my funds back with there guidelines and skills you can always contact them via EMAIL : ghostchampionwizard @ gmail.com Telegram : https://t.me/WizardGhosthacker
Buy 100% undetectable counterfeit money grade AAA+ | SSD CHEM | ATM CLONED CARDS FOR SALE (infodocuments4gmail.com)WhatsApp: +237673528224
We are the best and Unique producer of HIGH QUALITY Undetectable Counterfeit Banknotes, with over a billion
of our products circulating around the world. we produce genuine dollar, British pound and euro banknotes with different serial numbers on each account. We stock semi-finished banknote bases that have already been engraved and designed on the front and back of the various currencies of each denomination. We need a partner with whom we will work discreetly to complete the production of our semi-finished banknote substrates and make them legal tender that we will discuss in a personal meeting if you agree to work with us. We will schedule an appointment to show you everything and discuss all details and prepare samples so you can pass the test to confirm authenticity. All notes will pass important test such as ultraviolet light, pencil test,
All Inquiries Below
Email: infodocuments4@gmail.com
WhatsApp : +1(314)866-9771
WhatsApp: +237673528224
Telegram ID : @Loyaltyco