Life has a way of giving you a massive reality check at times though doesn't it?
On Friday I was told that Val Franklin had passed away, then on Sunday we found out that Rob Burrow had lost his battle against the disease. A stark reminder that at present there is only one winner when MND is involved.
I'm guessing that some of you reading this may well have known Val and so are fully aware of the lovely person she was. I first met her next to the 18th green at Rushcliffe Golf Club, as we waited for a group of ladies to finish a '72 holes in a day challenge'. Raising money for Stand Against MND. Val was one of the first people I'd met in person who also had MND. At that time I was visibly more advanced in my progression than Val, in my powered wheelchair and reliant on my ventilator. A casual observer would never have known we had the same illness.
Val would later tell me that she found that first meeting quite difficult. Looking at me was frightening, like seeing what the future could hold. To their enormous credit, Val and her husband Pete agreed to come over for a cup of tea to pick my brains about my journey. Nobody ever warns you about the mountains of admin that come with a degenerative disease, and if you don't keep up with it at your end you might not get the help you need. I'd been through a lot of it and I hope had a few useful tips.
Opening up and wanting that information takes immense courage. It shows in my view an acceptance of your circumstances, and a determination to make the most of the time you have. I'm so pleased that Val and I shared that outlook.
You would never have known what we were discussing based on the amount of laughter in the room. I was left with that familiar feeling of confusion as to why MND seems to attack such lovely people.
Val and her family became and remain stellar supporters of the charity, and I would frequently see them at the monthly golf club quizgo (highly recommended if you enjoy trivia and are of course willing to donate any winnings to a local charity...)* Val always had a smile and a chat whilst Pete always had a one liner at the ready.
*Not compulsory
Over time we saw each other less and less as we both found spending time out and about more challenging, until I heard the news last Friday. RIP Val, it was lovely to know you. All my love to the Franklin family.
A life with MND, particularly when you are integrated with patient communities on line and in person, means that losing people is tragically a frequent occurrence. A consistent reminder of your own proximity to death.
So how to react to such sobering news on such a regular basis? I remember I am alive. I have opportunity. I love. I laugh, I strive, I experience. In Vals honour, in Robs honour, for all the fallen warriors I've lost along the way,
I will live the most significant life I can muster.
Nothing else matters
1403 comments
Wishing good fortune to everyone who comes across this comment! I went bankrupt last year due to failed business ideas. I used to enjoy playing the lottery for fun but as my situation worsened, I sought help to win big this time and found a man called MEDUZA, who has assisted numerous individuals worldwide with their financial issues. This man prepared a powerful spell for me and in my dreams, his spell revealed the winning lottery numbers to me just as he said. I played the game with the numbers and to my astonishment, I discovered that I had won $259 million Jackpot; I’m now free of debt. Without Meduza, I wouldn’t have made it through the tough times I experienced last year. Truly, MEDUZA is a divine presence among us. If you are currently struggling, reach out to MEDUZA through the below information’s.
Whats-App: +1 807 907 2687
Email: lordmeduzatemple@hotmail.com
Face-book Page: lordmeduza
LIFE CHANGING TESTIMONY
I lost $57,800 crypto trading platform after being promised 15% daily profits. It was a financial nightmare! Desperate, I turned to a trusted friend who introduced me to the amazing team at JetWebHackers. In just 48 hours, they tracked down the scammers and recovered my funds! Their exceptional service changed my life. If you’ve been scammed, don’t hesitate—contact JetWebHackers for a swift recovery!and also i got mine ATM blank card last week from jetwebhackers and I have used it to get $55,000 Jetwebhackers is giving out the card just to help the poor and needy though it is illegal but it is something nice and he is not like other scam pretending to have the blank ATM cards. And no one gets caught whenusing the card. get yours from Jetwebhackers ⭐️⭐️⭐️⭐️⭐️
Reach out to them today and turn your situation around!
WEBSITE: jetwebhackers. com
EMAIL: jetwebhackers@gmail.com
WHATSAPP: +1 (505) 428-8792
I never thought I’d need to recover lost Bitcoin. I was always cautious, double-checking addresses and securing my accounts. But one phishing link changed everything. It looked identical to a crypto platform I trusted. Moments after entering my login details, my Bitcoin was gone, sent to an unknown wallet.
The financial loss was painful, but the helplessness was worse. I knew that blockchain transactions are irreversible, and most forums confirmed my fear: “Once it’s gone, it’s gone.”
Then I found Morphohack Cyber Service, a recovery team that tracks stolen cryptocurrency, I reached out to them via E-mail (Morphohack@cyberservices . com).
I was skeptical, but with nothing left to lose, I reached out. From the start, they were clear and professional. They explained their method, tracing the stolen funds across the blockchain to find where they ended up.
In my case, the Bitcoin had passed through several wallets before arriving at a centralized exchange. Morphohack acted fast, working with the exchange to freeze the assets using blockchain evidence.
Weeks later, I got the email I didn’t think would come, my Bitcoin had been recovered.
If you ever face a similar loss, act quickly and contact experts like Morphohack Cyber Services. Their help made the difference between a permanent loss and a second chance.
To everyone who has been a victim of cryptocurrency binary investment scams currently going on right now accross the globe. I was a victim of it and I was ashamed of how I lost 807,000 Dirhams to these people pretending to be forex and binary traders. My family almost left me and I was going to lose everything until I came across a review online about jamesmckaywizard online on how he has been helping people in recovering cryptocurrency funds from these scammers. This special group of professional tech team was able to recover my money within 8hours. I’m really glad such a group exists and I’m happily sharing this out there with anyone who needs their service to recover their money. You can contact them at Email:jamesmckaywizard at gmail dot com or what’sapp ++316,,,, 574…. 46248.
If you ever need hacking services, look no further. I found myself in a difficult situation after losing almost $510,000 USD in bitcoin. I was distraught and had no hope of survival because i lost my life savings to this schme, I had no chance of recovering my investment. Until i came accrose an article on google about (jamesmckaywizard at gmail.com) A real life recovery expert, everything changed completely after contacting him and explaining my odeal to him and he quickly stepped in and assisted me in recovering 95% of my lost funds. They guarantee their clients and i got the highest level of happiness their services are highly recommended. so i’m putting this here for anyone who require their services too":Email:jamesmckaywizard at gmail dot com or what’sapp +316 (5744) 6248.