Life has a way of giving you a massive reality check at times though doesn't it?
On Friday I was told that Val Franklin had passed away, then on Sunday we found out that Rob Burrow had lost his battle against the disease. A stark reminder that at present there is only one winner when MND is involved.
I'm guessing that some of you reading this may well have known Val and so are fully aware of the lovely person she was. I first met her next to the 18th green at Rushcliffe Golf Club, as we waited for a group of ladies to finish a '72 holes in a day challenge'. Raising money for Stand Against MND. Val was one of the first people I'd met in person who also had MND. At that time I was visibly more advanced in my progression than Val, in my powered wheelchair and reliant on my ventilator. A casual observer would never have known we had the same illness.
Val would later tell me that she found that first meeting quite difficult. Looking at me was frightening, like seeing what the future could hold. To their enormous credit, Val and her husband Pete agreed to come over for a cup of tea to pick my brains about my journey. Nobody ever warns you about the mountains of admin that come with a degenerative disease, and if you don't keep up with it at your end you might not get the help you need. I'd been through a lot of it and I hope had a few useful tips.
Opening up and wanting that information takes immense courage. It shows in my view an acceptance of your circumstances, and a determination to make the most of the time you have. I'm so pleased that Val and I shared that outlook.
You would never have known what we were discussing based on the amount of laughter in the room. I was left with that familiar feeling of confusion as to why MND seems to attack such lovely people.
Val and her family became and remain stellar supporters of the charity, and I would frequently see them at the monthly golf club quizgo (highly recommended if you enjoy trivia and are of course willing to donate any winnings to a local charity...)* Val always had a smile and a chat whilst Pete always had a one liner at the ready.
*Not compulsory
Over time we saw each other less and less as we both found spending time out and about more challenging, until I heard the news last Friday. RIP Val, it was lovely to know you. All my love to the Franklin family.
A life with MND, particularly when you are integrated with patient communities on line and in person, means that losing people is tragically a frequent occurrence. A consistent reminder of your own proximity to death.
So how to react to such sobering news on such a regular basis? I remember I am alive. I have opportunity. I love. I laugh, I strive, I experience. In Vals honour, in Robs honour, for all the fallen warriors I've lost along the way,
I will live the most significant life I can muster.
Nothing else matters
1404 comments
If you ever need hacking services, look no further. I found myself in a difficult situation after losing almost $510,000 USD in bitcoin. I was distraught and had no hope of survival because i lost my life savings to this schme, I had no chance of recovering my investment. Until i came accrose an article on google about (jamesmckaywizard at gmail.com) A real life recovery expert, everything changed completely after contacting him and explaining my odeal to him and he quickly stepped in and assisted me in recovering 95% of my lost funds. They guarantee their clients and i got the highest level of happiness their services are highly recommended. so i’m putting this here for anyone who require their services too":Email:jamesmckaywizard at gmail dot com or what’sapp +316 (5744) 6248.
I invested $86,000 worth of USDT into a stock market trading app, believing it to be a legitimate opportunity for me to make profit. It wasn’t until later that I discovered it was a Ponzi scheme. As a full-time investor, I was devastated by the loss and felt immense regret for trusting the marketing admin with my hard earned money. While grappling with the aftermath, I came across Reviews of jamesmckaywizard on GOOGLE while i was looking for ways to recover my stolen funds back. After researching, I found them to be a genuine and trustworthy crypto recovery team. I reached out to them, and they promptly guided me through the entire process via their email. Thanks to their expertise and dedication, my USDT was fully recovered. I highly recommend their Service to anyone seeking assistance in recovering their crypto or money lost to anyone online due to false pretense or whatsoever via Email: jamesmckaywizard at gmail dot com or what ’Sapp +31- 65-74-46-24-8.
If you need to recover cryptocurrency that has been lost to wallet hackers, internet scammers, or BTC transferred to the wrong address, I suggest Wizard James Recovery, a very trustworthy recovery organization. Just by sending my case to the Expert and supplying the necessary data, Wizard James Recovery was able to help me recover my Bitcoin. I’m glad I was able to recover this much after losing even more to the fraudulent broker I initially put my belief in. Errors are unavoidable, thus we can never be careful enough. If you have lost money to cryptocurrency scams, I strongly advise getting in touch with Wizard James Recovery.
Mail: (wizardjamesrecovery@usa.com)
If you need to recover cryptocurrency that has been lost to wallet hackers, internet scammers, or BTC transferred to the wrong address, I suggest Wizard James Recovery, a very trustworthy recovery organization. Just by sending my case to the Expert and supplying the necessary data, Wizard James Recovery was able to help me recover my Bitcoin. I’m glad I was able to recover this much after losing even more to the fraudulent broker I initially put my belief in. Errors are unavoidable, thus we can never be careful enough. If you have lost money to cryptocurrency scams, I strongly advise getting in touch with Wizard James Recovery.
Mail: (wizardjamesrecovery@usa.com)
Legitimate Crypto Recovery Company Hire OPTIMISTIC HACKER GAIUS
I was scammed out of my Bitcoin and thought it was gone forever until I contacted OPTIMISTIC HACKER GAIUS. From the first message, they reassured me and began the recovery process immediately. Their expertise in blockchain forensics and crypto tracing is unmatched. Within days, they successfully retrieved my lost funds and restored my hope. I’m beyond grateful for their professionalism, honesty, and dedication. Truly the best in crypto recovery services.
Their Contact Information is the following
WhatsApp: +44 737 674 0569
Email Address: support @ optimistichackargaius .c o m
Webpage: optimistichackargaius .c o m