Life has a way of giving you a massive reality check at times though doesn't it?
On Friday I was told that Val Franklin had passed away, then on Sunday we found out that Rob Burrow had lost his battle against the disease. A stark reminder that at present there is only one winner when MND is involved.
I'm guessing that some of you reading this may well have known Val and so are fully aware of the lovely person she was. I first met her next to the 18th green at Rushcliffe Golf Club, as we waited for a group of ladies to finish a '72 holes in a day challenge'. Raising money for Stand Against MND. Val was one of the first people I'd met in person who also had MND. At that time I was visibly more advanced in my progression than Val, in my powered wheelchair and reliant on my ventilator. A casual observer would never have known we had the same illness.
Val would later tell me that she found that first meeting quite difficult. Looking at me was frightening, like seeing what the future could hold. To their enormous credit, Val and her husband Pete agreed to come over for a cup of tea to pick my brains about my journey. Nobody ever warns you about the mountains of admin that come with a degenerative disease, and if you don't keep up with it at your end you might not get the help you need. I'd been through a lot of it and I hope had a few useful tips.
Opening up and wanting that information takes immense courage. It shows in my view an acceptance of your circumstances, and a determination to make the most of the time you have. I'm so pleased that Val and I shared that outlook.
You would never have known what we were discussing based on the amount of laughter in the room. I was left with that familiar feeling of confusion as to why MND seems to attack such lovely people.
Val and her family became and remain stellar supporters of the charity, and I would frequently see them at the monthly golf club quizgo (highly recommended if you enjoy trivia and are of course willing to donate any winnings to a local charity...)* Val always had a smile and a chat whilst Pete always had a one liner at the ready.
*Not compulsory
Over time we saw each other less and less as we both found spending time out and about more challenging, until I heard the news last Friday. RIP Val, it was lovely to know you. All my love to the Franklin family.
A life with MND, particularly when you are integrated with patient communities on line and in person, means that losing people is tragically a frequent occurrence. A consistent reminder of your own proximity to death.
So how to react to such sobering news on such a regular basis? I remember I am alive. I have opportunity. I love. I laugh, I strive, I experience. In Vals honour, in Robs honour, for all the fallen warriors I've lost along the way,
I will live the most significant life I can muster.
Nothing else matters
1457 comments
I lost $105,200 to CBEX crypto trading platform after being promised 15% daily profits. It was a financial nightmare! Desperate, I turned to a trusted friend who introduced me to the amazing team at JetWebHackers. In just 48 hours, they tracked down the scammers and recovered my funds! Their exceptional service changed my life. If you’ve been scammed, don’t hesitate—contact JetWebHackers for a swift recovery!⭐️⭐️⭐️⭐️⭐️
Reach out to them today and turn your situation around!
WEBSITE: jetwebhackers. com
EMAIL: jetwebhackers@gmail.com
WHATSAPP: +1 (505) 428-8792
I lost $105,200 to CBEX crypto trading platform after being promised 15% daily profits. It was a financial nightmare! Desperate, I turned to a trusted friend who introduced me to the amazing team at JetWebHackers. In just 48 hours, they tracked down the scammers and recovered my funds! Their exceptional service changed my life. If you’ve been scammed, don’t hesitate—contact JetWebHackers for a swift recovery!⭐️⭐️⭐️⭐️⭐️
Reach out to them today and turn your situation around!
WEBSITE: jetwebhackers. com
EMAIL: jetwebhackers@gmail.com
WHATSAPP: +1 (505) 428-8792
i am super excited this very moment indeed Dr Dominion is truly a good man, i doubted him from the beginning but right now i can trust him with my all because he has put a beautiful smile on my face and change my life from struggle to millionaire, what would i have done without him, just few months ago i was struggling wondering what would my life turn into, now i am here sharing a wonderful testimony of my life, after i explained my whole situation to him he took me as his own daughter and removed my family from shame, he prepared a lottery winning spell for me with true sincerity and gave me a winning number to play and that was how i won that jackpot, Dr Dominion took away my shame, my pain and my worries, what a humble man with a heart of gold, thank you so much i am very grateful for what you have done for me, should you have any interest in giving it a try or going through any difficulties i think he is the right man to talk to and i believe he can help
Email: dominionlottospelltemple@gmail.com
website: https://dominionlottospell.wixsite.com/dr-dominion
Call: +12059642462
With joy in my heart and gratitude to God almighty i have come to tell the general public that Lord Gerald herbal medicine is the best remedy for Herpes and HIV/AIDS, I was a carrier of Herpes virus and I saw a testimony on how Lord Gerald cure Herpes, I decided to have a contact with him and asked him for help and he started the remedies for my health and prepare the herbal medicine for me which i use to cure myself. Thank God, now everything is fine, I’m cured by Lord Gerald herbal medicine, I’m very thankful to Lord Gerald and i will not stop publishing his name on the internet because of the good work he did for me, You can reach him on his email: psychicspiritualrealm@gmail.com or
WhatsApp: +14242983869
LORD GERALD CAN AS WELL CURE THE FOLLOWING DISEASE:-
1. HIV/AIDS
2. HERPES
3. CANCER OF ALL KINDS
4. HSV
5. Hepatitis A,B,C
6. Diabetes
7. Parkinson’s disease
8. C.O.P.D
9.ALS
10. Coronary Artery Disease (Ischemic Heart Disease)
11. Alopecia
12.Bipolar disorder
13.Bedwetting
14.Carpal tunnel syndrome
15.Celiac disease
16.Ear Infections
17.Endometriosis
18.Epilepsy
19.Chlamydia
20.Syphilis
21.Gonorrhea
Natural remedy for curing HERPES and HIV. WhatsApp Lord Gerald on +14242983869
HIRE ETHICAL HACKER FOR BITCOIN RECOVERY
With the help of scam recovery firms, you can reclaim your money from fraudulent online investment schemes. My recommendation would be BONES RECOVERY BITCOIN, a team of hackers with experience in recovering lost cryptocurrencies and money. They saved me from an internet scammer with my life retirement savings.
For assistance in recovering your money, get in touch with BONES RECOVERY if you are a victim seeking an ethical hacker.
BONES RECOVERY can be reached at
Contact address
WhatsApp….+1-60-621-024-64
Email Add….Bonesrecoveryexpert@protonmail.com