Life has a way of giving you a massive reality check at times though doesn't it?
On Friday I was told that Val Franklin had passed away, then on Sunday we found out that Rob Burrow had lost his battle against the disease. A stark reminder that at present there is only one winner when MND is involved.
I'm guessing that some of you reading this may well have known Val and so are fully aware of the lovely person she was. I first met her next to the 18th green at Rushcliffe Golf Club, as we waited for a group of ladies to finish a '72 holes in a day challenge'. Raising money for Stand Against MND. Val was one of the first people I'd met in person who also had MND. At that time I was visibly more advanced in my progression than Val, in my powered wheelchair and reliant on my ventilator. A casual observer would never have known we had the same illness.
Val would later tell me that she found that first meeting quite difficult. Looking at me was frightening, like seeing what the future could hold. To their enormous credit, Val and her husband Pete agreed to come over for a cup of tea to pick my brains about my journey. Nobody ever warns you about the mountains of admin that come with a degenerative disease, and if you don't keep up with it at your end you might not get the help you need. I'd been through a lot of it and I hope had a few useful tips.
Opening up and wanting that information takes immense courage. It shows in my view an acceptance of your circumstances, and a determination to make the most of the time you have. I'm so pleased that Val and I shared that outlook.
You would never have known what we were discussing based on the amount of laughter in the room. I was left with that familiar feeling of confusion as to why MND seems to attack such lovely people.
Val and her family became and remain stellar supporters of the charity, and I would frequently see them at the monthly golf club quizgo (highly recommended if you enjoy trivia and are of course willing to donate any winnings to a local charity...)* Val always had a smile and a chat whilst Pete always had a one liner at the ready.
*Not compulsory
Over time we saw each other less and less as we both found spending time out and about more challenging, until I heard the news last Friday. RIP Val, it was lovely to know you. All my love to the Franklin family.
A life with MND, particularly when you are integrated with patient communities on line and in person, means that losing people is tragically a frequent occurrence. A consistent reminder of your own proximity to death.
So how to react to such sobering news on such a regular basis? I remember I am alive. I have opportunity. I love. I laugh, I strive, I experience. In Vals honour, in Robs honour, for all the fallen warriors I've lost along the way,
I will live the most significant life I can muster.
Nothing else matters
1643 comments
This message is for anyone who has fallen victim to crypto investment scams. There are many false recommendations out there, so it’s important to be vigilant.
I personally lost $280,000 in Bitcoin to an investment scam and was scammed again while trying to recover my funds. After months of frustration.
I discovered ****( Team Qualified Expertise * Who was able to help me recover my lost money successfully back to my wallet account within 24hours.
WEBSITE: https : //team . qualifiedexperties . c o m
EMAIL: support @ qualifiedexperties . com
Gmail:teamqualifiedrecoveryexpertise @ gmail . com
What’s App ( +1 (603) 702 ‑ 4335)
World Rehabilitate Clinic Herbs promotes natural healing with herbal remedies for herpes (HSV-1 & HSV-2), diabetes, stroke, and excess weight. Their plant-based formulas support viral control, blood sugar balance, stroke recovery, and natural weight loss by boosting circulation, nerve function, and metabolism. Rooted in tradition and backed by modern insight, they offer safe, effective alternatives for lasting wellness.
My husband filed for a divorce after 8 years of marriage it was difficult on me and the kids I did all I could to save my marriage and my family but all fail until a friend of mine told me about the wonderful work of SPIRITUAL UYI I contacted him and he assured me 24hours all will be well the next day to my greatest surprise my husband came back home and he went on his knees and was crying begging me for forgiveness I’m so happy right now thank you so much SPIRITUAL UYI, One message to him today can change your life too for the better.Email: spiritualuyi@gmail.com Read more on his website: https://spiritualuyi.wordpress. WhatsApp ? +2348169844860.
I am posting this review here because I want to be of help to anyone out there, who in one or two ways have been scammed by online investment platforms. After going through a lot to recover my bitcoin although many people told me it’s impossible to recover your bitcoin If you’ve lost your bitcoin as a result of investing in binary options, trading platforms, your account was hacked or other bitcoin related scams or lost money to scammers online in whichever ways then You’re not alone. (I lost over $65,950 to skyrockettrade). Being a scam victim myself, I tried several means to recover my funds all to no avail, till I came across a cyber crime and recovery expert’s address online by name jamesmckaywizard at gmail dot com He literally saved my life, all i lost to these fake investors skyrockettrade was recouped in just a few days (a total of 3.7721 BTC) was recovered, Kindly send a message to the contact below if you’ve been in such situations and you are seeking recovery // jamesmckaywizard at gmail dot com or WhatsApp ++316 (5744) 6248.. and thank me later..
In Dec, 2021, I invested the sum of 19.78 BTC with a fake blockchain impostor I met online, all the money I had saved up since 2014 got stolen just within a Month, my whole life almost crumbled, to crown it all my FICO score was so bad that I couldn’t even afford securing a loan to help my kids, but everything became better after I joined a forum online where I met people testifying about, a hacker who has been helping thousands of people all over the world. I decided to reach out to him via the following contact shared on the platform // jamesmckaywizard at gmail dot com or WhatsApp +31622647750., they responded and requested for all necessary information needed to aid my JOB, to my greatest surprise my bitcoin was recovered and my credit report fixed, FICO score was boosted to 783 across all 3-credit bureau’s, all negative items cleared just within 8 days. I can’t stop expressing my profound gratitude to this great team of hackers, I strongly recommend them to anyone in need.jamesmckaywizard at gmail dot com or WhatsApp +316** 5744// 6248..