Staying away from home with late stage MND is an absolute mission. Specialist accommodation is massively rare so I stopped looking for accommodation that has everything I need a long time ago. Instead I find places that have enough space and hire or travel with all my equipment. To give you an idea my packing list for this trip had 76 items on it...
Of course I can't physically help to pack any of that, and trying to control too much of the process is a very fast path to massive frustration. However its not easy to let go when so much of that equipment is essential to keeping me alive and cared for, I need to have a lot of trust in my care team and thankfully I do.
Then of course there are the people who will physically push me around the London Marathon. Taking responsibility for my care at the same time. Not only do they have to be physically fit enough to comfortably run 26.2 miles, they have to monitor me and provide any interventions I may need. Distance running is traditionally a solo pursuit, taking on responsibility for me as well is a heroic effort in my view.
Then there are the people who organise the administrative side, the logistics and the publicity. Making sure all my equipment is where it needs to be, everyone has their accreditation, and that we raise some cash for research and care too.
In total that covers around 12 people. The vast majority of whom are unpaid. Those who are paid receive a fraction of what they deserve (that's a whole other blog post) and go above and beyond to help me a
ttempt these ridiculous challenges. Those 12 people are just the tip of the iceberg, my family, friends, trustees and of course all the amazing people who follow and support the charity all have my heartfelt gratitude. I don't really know how I've created this incredible support, or why so many people are willing to give up their time and energy to support me and the charity. It's beyond anything I hoped for or anticipated when we started Stand Against MND and I'm humbled by it.
It gives me the will to carry on, a purpose. Helps me maintain a positive attitude whilst being assaulted by the most brutal disease. Thank you. Every single one of you.
If you feel inspired to help us fund more vital research, you can donate here.
Thank you so much for reading.
Sam x
2214 comments
Buy Real Passport,Drivers License( Whatsapp: +447767767080 )Residence Permit,ID Cards,Certificates,Diploma https://bacheventures.ltd/
Buy EU Residence Permit Online Home / EU Residence Permit Our Services Buy Driver’s License Online Buy Passports Online Buy ID Cards Online Buy Residence Permits Online Buy Counterfeit
Whatsapp : +447767767080
https://bacheventures.ltd/
Telegram ID : legitdcumentplug infofastdocumentationgmail.com
Why Choose Us?
Authenticity You Can Trust: All documents are registered and indistinguishable from those obtained through traditional channels.
Expert Team: Our skilled professionals handle every order with precision and confidentiality.
Secure Transactions: Your personal information is protected with advanced security measures, ensuring privacy at every step.
Global Reach: We cater to clients worldwide, regardless of location or nationality.
Efficient Process: Avoid lengthy waiting times and bureaucratic delays with our streamlined service
Whatsapp : +447767767080
https://bacheventures.ltd/
Telegram ID : legitdcumentplug infofastdocumentationgmail.com
Buy online Easily Top Quality Fake banknotes Whatsapp : 447767767080 Face to Face Possible
BUY 100% UNDETECTABLE FAKE BANKNOTES Whatsapp :447767767080
Website: https://noveltynotes.shop/
Buy Dollar Bills
Buy AUD Bills
Buy Euro Bills
Buy GBP Bills
Buy CAD Bills
Buy undetectable fake $100 dollar
Buy undetectable fake 20 euro bills online
Buy undetectable fake $10 dollar
https://noveltynotes.shop/
Whatsapp : +447767767080
Email : noveltynotes8@gmail.com
Telegram ID : @legitdcumentplug
✅ Legal Uses of Fake Money
Film and Television Props : Used in movies, TV shows, and commercials.
Buy real goods or services.
Pass off as real currency (counterfeiting).
Deceive someone for financial gain.
https://noveltynotes.shop/
Whatsapp : +447767767080
Email : noveltynotes8@gmail.com
Telegram ID : @legitdcumentplug
There are several platforms and vendors where fake money for sale is available, often marketed for legitimate purposes like props or collectibles but ours is real used for purchases. When choosing a supplier, consider their reputation, the quality of their products, and customer reviews. Opt for vendors who clearly state the intended use of their products. Contact us and get started today!
https://noveltynotes.shop/
Whatsapp : +447767767080
Email : noveltynotes8@gmail.com
Telegram ID : @legitdcumentplug
Are you searching for a real spell caster ?
It is amazing how quickly Dr. Excellent brought my husband back to me.
My name is Heather Delaney. I married the love of my life Riley on 10/02/15 and we now have two beautiful girls Abby & Erin, who are conjoined twins, that were born 07/24/16. My husband left me and moved to be with another woman. I felt my life was over and my kids thought they would never see their father again. I tried to be strong just for the kids but I could not control the pains that tormented my heart, my heart was filled with sorrows and pains because I was really in love with my husband. I have tried many options but he did not come back, until i met a friend that directed me to Dr. Excellent a spell caster, who helped me to bring back my husband after 11hours. Me and my husband are living happily together again, This man is powerful, contact Dr. Excellent if you are passing through any difficulty in life or having troubles in your marriage or relationship, he is capable of making things right for you. Don’t miss out on the opportunity to work with the best spell caster.
Here his contact. Call/WhatsApp him at: +2348084273514 "
Or email him at: Excellentspellcaster@gmail.com ,
For more information visit his website:https://drexcellentspellcaster.godaddysites.com
My husband left me for another woman a few months ago and ever since then my life has been filled with pain and agony because my husband was my first love whom I have spent my entire life with. A friend and also a colleague from work told me he saw some testimonies of a spiritual counselor called Doctor Muna, He can bring back lover within some few days. Ridiculously, I laughed it out and said I am not interested. But for friendship’s sake, she consulted this God sent man on my behalf and to my greatest surprise, Immediately after 12 hours, my husband called me for the very first time for over 7 months saying “I miss you babe and I’m so sorry for everything I made you went through” I couldn’t say a word but cried over the phone and hanged up. We are back together and living Happily together again. To be honest, I still can’t believe it, because it’s highly unbelievable. Thank you DOCTOR MUNA for bringing back my love and also to my SELFLESS FRIEND. Laura, who interceded on my behalf. For anyone who might need help of this wonderful spiritual counselor, here is the email address: marvelspelltemple@gmail.com, Also add him on WhatsApp: +2347035449257
With immense joy in my heart, I am thrilled to share that my lost/Ex lover has returned to me, all thanks to the extraordinary Love Spell powers of Priest AZ! I had searched far and wide for help, but no one could bring back the love of my life – until I met Priest AZ. His powerful & Effective love spell brought back my lost lover within just 48 hours! I highly recommend those seeking help to rekindle their relationship, Those seeking to get back their Ex Husband/Wife, those Seeking to stop Divorce and restore a separated Relationship/Marriage to reach out to Priest AZ on WhatsApp: +2349122985051 or Email: Mightylovespell@gmail.com. Don’t wait – take the first step towards reunification with your Ex lover, and visit his website at Mightylovespell.com. Experience the magic of love Spell and reunite with your loved one within 48 hours!