Staying away from home with late stage MND is an absolute mission. Specialist accommodation is massively rare so I stopped looking for accommodation that has everything I need a long time ago. Instead I find places that have enough space and hire or travel with all my equipment. To give you an idea my packing list for this trip had 76 items on it...
Of course I can't physically help to pack any of that, and trying to control too much of the process is a very fast path to massive frustration. However its not easy to let go when so much of that equipment is essential to keeping me alive and cared for, I need to have a lot of trust in my care team and thankfully I do.
Then of course there are the people who will physically push me around the London Marathon. Taking responsibility for my care at the same time. Not only do they have to be physically fit enough to comfortably run 26.2 miles, they have to monitor me and provide any interventions I may need. Distance running is traditionally a solo pursuit, taking on responsibility for me as well is a heroic effort in my view.
Then there are the people who organise the administrative side, the logistics and the publicity. Making sure all my equipment is where it needs to be, everyone has their accreditation, and that we raise some cash for research and care too.
In total that covers around 12 people. The vast majority of whom are unpaid. Those who are paid receive a fraction of what they deserve (that's a whole other blog post) and go above and beyond to help me a
ttempt these ridiculous challenges. Those 12 people are just the tip of the iceberg, my family, friends, trustees and of course all the amazing people who follow and support the charity all have my heartfelt gratitude. I don't really know how I've created this incredible support, or why so many people are willing to give up their time and energy to support me and the charity. It's beyond anything I hoped for or anticipated when we started Stand Against MND and I'm humbled by it.
It gives me the will to carry on, a purpose. Helps me maintain a positive attitude whilst being assaulted by the most brutal disease. Thank you. Every single one of you.
If you feel inspired to help us fund more vital research, you can donate here.
Thank you so much for reading.
Sam x
4584 comments
Don’t Let Crypto Theft Win – Recover Your Bitcoin & USDC via META TECH RECOVERY PRO
If you have been scammed out of cryptocurrency and are seeking to recover your funds, you may benefit from contacting META TECH RECOVERY. As a professional cyber intelligence and crypto tracing and recovery company, META TECH RECOVERY specializes in assisting victims in investigating suspicious activity, identifying likely points of compromise, and pursuing practical recovery pathways. Contact them via
- Support (@) metatechrecoverypro (.) com
- https://wa.link/5ay4fv -
- https://metatechrecoverypro (.) com
Crypto scams frequently involve complex techniques such as phishing, fraudulent smart contracts, compromised wallets, and the rapid movement of assets through multiple blockchain addresses to reduce traceability. In these situations, timely and systematic action is essential. META TECH RECOVERY applies structured investigative processes to analyze transaction histories, map fund flows across wallets, and compile actionable evidence that can support recovery efforts. By leveraging specialized blockchain analytics and cyber intelligence methods, the team helps clients understand what occurred, where assets moved, and what options may still exist.
META TECH RECOVERY can advise on risk reduction measures to help prevent repeat incidents. This may include guidance on wallet security practices, appropriate use of authentication mechanisms, verification of legitimate platforms, and steps to secure devices or accounts that may have been compromised. Such preventive actions can be especially valuable given that many victims continue to face additional attempts once scammers recognize they have identified a vulnerable target.
For victims who are ready to pursue recovery, contact META TECH RECOVERY today. The team is prepared to review your case
https://x.com/NP5230322012050/status/2064220369654100395?s=20
https://bsky.app/profile/thanabodee02.bsky.social/post/3mntid6h3qk26
https://Thanabodee168.raindrop.page/jopneww-71770384
https://mastodon.social/@Thanabodee168/116718572129397629
https://tooter.in/Thanabodee168/posts/116718586480230630
https://multy.me/yqZaP
https://x.com/NP5230322012050/status/2064220369654100395?s=20
https://bsky.app/profile/thanabodee02.bsky.social/post/3mntid6h3qk26
https://Thanabodee168.raindrop.page/jopneww-71770384
https://mastodon.social/@Thanabodee168/116718572129397629
https://tooter.in/Thanabodee168/posts/116718586480230630
https://multy.me/yqZaP
I was hurt and heart broken when my husband left me and moved to Ohio to be with another woman. I felt my life was over and my kids thought they would never see their father again. I tried to be strong just for the kids but I could not control the pains that tormented my heart, my heart was filled with sorrows and pains because I was really in love with my husband. I tried many option and a few people tried to help me without success. One day as i was surfing the internet, i found contact of Dr Ilekhojie whom my instinct instantly told me could help me. He performed the needed work for reconciliation and my husband who has been gone for months returned on his own. We are living happily together again. I will advice anyone that have relationship problem or marriage problem to reach out to Dr Ilekhojie as he’s the solution to all your problems. Here his contact. WhatsApp him at: +2348147400259 or or his Email: gethelp05@gmail.com
REVIEW ON INSTANT LOVE SPELL THAT BROUGHT MY EX-HUSBAND BACK TO ME IN JUST 24 HOURS CONTACT HIM NOW AND EXPERIENCE HIS POWERFUL SPELL AT PERFECTSOLUTIONTEMPLES@GMAIL.COM USA, UK, FRANCE, CANADA, AUSTRALIA, NETHERLANDS, AUSTRIA, BELGIUM, IRELAND.
My name is Sonja K Ortmann, I recall encountering a remarkable Spell Caster by the name of DR SARUMAN during my stay in Florida around Orlando last year. Although I was initially uncertain about how his spells worked, I decided to take a chance and contacted him. I requested an instant Love spell, and to my amazement, it worked brilliantly, leaving me thrilled beyond words. In less than 24 hours, my husband had a massive argument with his mistress during their lunch date, left her there, and rushed home to me, filled with remorse and begging for my forgiveness. I am now reunited with my man, and he is entirely devoted and faithful to our marriage. I am eternally grateful to DR SARUMAN for making this possible, and I highly recommend him to anyone searching for a genuine and reliable spell caster. If you’re in need of a spell caster who can help you achieve your heart’s desires, don’t hesitate to contact DR SARUMAN through his contact Website: https://perfectsolutiontemple.weebly.com, YouTube Link: https://youtu.be/wv5jF27EKIs or email at perfectsolutiontemples@gmail.com. You can also chat with him directly on WhatsApp at +1 (970)837-9938. Take the first step towards achieving your dreams and contact DR SARUMAN today. because he is the right man to help you get all your spiritual problem solved with his powerful spell also you can reach him for the following spell work:
STROKE CURE
MAKE YOUR LOVER LOVE YOU MORE, WIN EX BACK, FRUIT OF THE WOMB, DIABETES, REVENGE SPELL, BUSINESS SPELL, ATTRACTION SPELL, LOTTERY SPELL, MONEY RITUAL, CANCERS, COURT CASE…