Staying away from home with late stage MND is an absolute mission. Specialist accommodation is massively rare so I stopped looking for accommodation that has everything I need a long time ago. Instead I find places that have enough space and hire or travel with all my equipment. To give you an idea my packing list for this trip had 76 items on it...
Of course I can't physically help to pack any of that, and trying to control too much of the process is a very fast path to massive frustration. However its not easy to let go when so much of that equipment is essential to keeping me alive and cared for, I need to have a lot of trust in my care team and thankfully I do.
Then of course there are the people who will physically push me around the London Marathon. Taking responsibility for my care at the same time. Not only do they have to be physically fit enough to comfortably run 26.2 miles, they have to monitor me and provide any interventions I may need. Distance running is traditionally a solo pursuit, taking on responsibility for me as well is a heroic effort in my view.
Then there are the people who organise the administrative side, the logistics and the publicity. Making sure all my equipment is where it needs to be, everyone has their accreditation, and that we raise some cash for research and care too.
In total that covers around 12 people. The vast majority of whom are unpaid. Those who are paid receive a fraction of what they deserve (that's a whole other blog post) and go above and beyond to help me a
ttempt these ridiculous challenges. Those 12 people are just the tip of the iceberg, my family, friends, trustees and of course all the amazing people who follow and support the charity all have my heartfelt gratitude. I don't really know how I've created this incredible support, or why so many people are willing to give up their time and energy to support me and the charity. It's beyond anything I hoped for or anticipated when we started Stand Against MND and I'm humbled by it.
It gives me the will to carry on, a purpose. Helps me maintain a positive attitude whilst being assaulted by the most brutal disease. Thank you. Every single one of you.
If you feel inspired to help us fund more vital research, you can donate here.
Thank you so much for reading.
Sam x
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I recommend this Psychic/Astrologist Tanya Debo (info.debo.org@gmail.com), who helped me bring back my Husband after years of separation.
With my desperation and relentless effort to get him back, i was scammed severally by fake online spell casters and psychic spiritualists and imposters who also operate pages and groups on social media just to defraud people. Such was my ordeal until my Aunty recommended Psychic Tanya Debo to me. She is a gifted spell caster, traditional healer and spiritualist. She also helped me out with other issues i was battling with in my personal life. My husband is back to me and the kids and we are a one happy 😊family in peace, love, joy and Harmony. As a matter of fact, my husband gave me password to his phone and i have full access to his phones and computer. He totally cut off the other woman who once took him away from me for years. Tanya Debo, you are the best online spell caster and i will continue to testify about your great works. You can reach her through this email address: info.debo.org@gmail.com Call/Whatsapp +2348101793937.
Tanya Debo also have solutions to the below situations and i strongly believe her, because i am a living testimony. I have also recommended some friends to her and they happy now, because Tanya Debo Helped them solve their problems. You can contact her for any help, she is very powerful and can solve the below problems and with 100% guarantee results.
Do you want your EX lover back?
Pregnancy Spells
Spells to protect you from Gun shot Or Any Form Of Sharp Objects
Spells For Third-party Removal/Unwanted interference Removal
Spell for your husband to appreciate you
Spell to get famous
Spells to grow business excessively
Spells to get a Job
Spells to get a husband
Spells to Win Court Case
Spells to get your loved ones out of prison
promotion spells
Protection Spells
Spells to win Lottery
Tanya Debo, you are the best online love spell caster to help people. And I will continue to testify about your great works.
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