Staying away from home with late stage MND is an absolute mission. Specialist accommodation is massively rare so I stopped looking for accommodation that has everything I need a long time ago. Instead I find places that have enough space and hire or travel with all my equipment. To give you an idea my packing list for this trip had 76 items on it...
Of course I can't physically help to pack any of that, and trying to control too much of the process is a very fast path to massive frustration. However its not easy to let go when so much of that equipment is essential to keeping me alive and cared for, I need to have a lot of trust in my care team and thankfully I do.
Then of course there are the people who will physically push me around the London Marathon. Taking responsibility for my care at the same time. Not only do they have to be physically fit enough to comfortably run 26.2 miles, they have to monitor me and provide any interventions I may need. Distance running is traditionally a solo pursuit, taking on responsibility for me as well is a heroic effort in my view.
Then there are the people who organise the administrative side, the logistics and the publicity. Making sure all my equipment is where it needs to be, everyone has their accreditation, and that we raise some cash for research and care too.
In total that covers around 12 people. The vast majority of whom are unpaid. Those who are paid receive a fraction of what they deserve (that's a whole other blog post) and go above and beyond to help me a
ttempt these ridiculous challenges. Those 12 people are just the tip of the iceberg, my family, friends, trustees and of course all the amazing people who follow and support the charity all have my heartfelt gratitude. I don't really know how I've created this incredible support, or why so many people are willing to give up their time and energy to support me and the charity. It's beyond anything I hoped for or anticipated when we started Stand Against MND and I'm humbled by it.
It gives me the will to carry on, a purpose. Helps me maintain a positive attitude whilst being assaulted by the most brutal disease. Thank you. Every single one of you.
If you feel inspired to help us fund more vital research, you can donate here.
Thank you so much for reading.
Sam x
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I’ve been in crypto for a few years though not a complete beginner, but definitely not a pro. Over time, I built up a decent portfolio, mostly stablecoins like USDT, spread across Ethereum, BSC, and occasionally Tron. I knew enough to move things around confidently… or so I thought. One night, I was transferring $180,000 worth of USDT from my Ethereum wallet to what I thought was my Binance Smart Chain wallet. I copied the BSC address from Trust Wallet, pasted it into MetaMask, and hit send. Gas fee confirmed, transaction successful. Then it hit me. I had sent ERC-20 tokens to a BEP-20 address—same string, sure, but completely different networks. The USDT was gone. Not stolen, not failed—just stuck. Sitting on the Ethereum blockchain, locked in a wallet address I couldn’t access on that chain. And since it was technically a valid transaction, there was no way to cancel or reverse it. I spent the next two days in full crisis mode on Reddit threads, YouTube tutorials, random Telegram “experts.” Most people said the funds were unrecoverable. A few hinted at some complicated “maybe” solutions, but none of that gave me any confidence. MetaMask couldn’t help, Binance said it was out of their control, and even a few friends of mine said I was probably out of luck. Then someone in a crypto dev group mentioned a company called SpyHost Cybersecurity Company. I’d never heard of them before, but the way they talked about them—it wasn’t like your typical “we recover your funds” type of service. This sounded more serious, like real professionals. From the first interaction, it felt different. They weren’t asking dumb questions or throwing out vague promises. I was assigned a case manager. And very possible—if handled right. Turns out, since I controlled both the Ethereum wallet (that sent the funds) and the BSC wallet (where I intended to receive them), they could use that to construct a custom recovery transaction. SpyHost had built their own internal tools to deal with this exact kind of issue—cases where tokens are trapped between chains but tied to the same address. And after about 72 hours, just like they said, the USDT hit my wallet( The full $180,000) What impressed me the most wasn’t just that they recovered the funds—it was how they handled the entire process. Professional, secure, detailed. Since then, I’ve recommended SpyHost Cybersecurity Company to anyone even remotely involved in crypto. Whether you’re a trader, investor, or just holding some coins for the long haul—if you ever find yourself in a mess like I was, these are the people you want in your corner and they can be reached out to through their official E-mail address which is (Spyhost@cyberdude. com)
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BITCOIN RECOVERY CONTACT CRYOGUARDS RECOVERY MASTER
Testimony by Diego Victor
I am immensely grateful to Cryoguards for helping me recover my lost Bitcoin worth $251,000 from a fraudulent investment platform. After the initial shock of being scammed, I turned to Cryoguards, and their expert team guided me through the recovery process with professionalism and care. Thanks to their dedication and knowledge, I was able to reclaim my funds and regain my peace of mind. I highly recommend Cryoguards to anyone who has faced similar challenges!
Email: cryo.guards@mail.com
Website: https://cryoguards9.wixsite.com/cryoguards