Staying away from home with late stage MND is an absolute mission. Specialist accommodation is massively rare so I stopped looking for accommodation that has everything I need a long time ago. Instead I find places that have enough space and hire or travel with all my equipment. To give you an idea my packing list for this trip had 76 items on it...
Of course I can't physically help to pack any of that, and trying to control too much of the process is a very fast path to massive frustration. However its not easy to let go when so much of that equipment is essential to keeping me alive and cared for, I need to have a lot of trust in my care team and thankfully I do.
Then of course there are the people who will physically push me around the London Marathon. Taking responsibility for my care at the same time. Not only do they have to be physically fit enough to comfortably run 26.2 miles, they have to monitor me and provide any interventions I may need. Distance running is traditionally a solo pursuit, taking on responsibility for me as well is a heroic effort in my view.
Then there are the people who organise the administrative side, the logistics and the publicity. Making sure all my equipment is where it needs to be, everyone has their accreditation, and that we raise some cash for research and care too.
In total that covers around 12 people. The vast majority of whom are unpaid. Those who are paid receive a fraction of what they deserve (that's a whole other blog post) and go above and beyond to help me a
ttempt these ridiculous challenges. Those 12 people are just the tip of the iceberg, my family, friends, trustees and of course all the amazing people who follow and support the charity all have my heartfelt gratitude. I don't really know how I've created this incredible support, or why so many people are willing to give up their time and energy to support me and the charity. It's beyond anything I hoped for or anticipated when we started Stand Against MND and I'm humbled by it.
It gives me the will to carry on, a purpose. Helps me maintain a positive attitude whilst being assaulted by the most brutal disease. Thank you. Every single one of you.
If you feel inspired to help us fund more vital research, you can donate here.
Thank you so much for reading.
Sam x
2085 comments
https://www.noteflight.com/profile/d01b0aa45483c6a4ecfe8cf31fecd8c33c3f22a4
https://www.designspiration.com/leen1362023/saves/
https://spinninrecords.com/profile
https://www.instructables.com/member/Yanbu/?cb=1745873769929
https://scioly.org/forums/memberlist.php?mode=viewprofile&u=157329
https://pastebin.com/u/Yanbu/comments
https://www.gta5-mods.com/users/Yanbu
https://www.divephotoguide.com/user/Yanbu/
https://audiomack.com/yanbu
https://www.magcloud.com/account
https://www.diggerslist.com/680f3e4976f84/about
https://speakerdeck.com/yanbu
https://triberr.com/Company11
https://www.hackerearth.com/leen1362023/ https://mastodon.social/Yanbu
https://www.producthunt.com/@company111
https://hub.docker.com/u/yanbu11?gl=1*1wb44oo*_ga*Mzc5ODI2MC4xNzQ2MjY4NzYz*_ga_XJWPQMJYHQ*czE3NDYyNjg3NjIkbzEkZzEkdDE3NDYyNjg5NjckajYkbDAkaDA.
https://www.custommagnums.com/members/yanbu.172085/
https://sketchfab.com/Yanbu
https://www.ezistreet.com/profile/yanbu/about
https://therabbitroom.kindful.com/dashboard
https://www.wonderhowto.com/settings/personal/
https://www.warriorforum.com/members/Yanbu.html?utm_source=internal&utm_medium=user-menu&utmcampaign=user-profile
https://www.behance.net/yanbucompany
https://qiita.com/Yanbu11
https://www.scca.com/account
http://profiles.delphiforums.com/n/pfx/profile.aspx?webtag=dfpprofile000&userId=1891255966
https://app.zintro.com/profile/yanbu?ref=Yanbu
https://www.openstreetmap.org/user/Yanbu%20111
https://app.giveffect.com/users/1601264-company
https://www.atar-almadinah.com/%D8%B4%D8%B1%D9%83%D8%A9-%D8%AA%D8%AE%D8%B2%D9%8A%D9%86-%D8%B9%D9%81%D8%B4-%D8%A8%D8%A7%D8%A8%D9%87%D8%A7.html
https://www.atar-almadinah.com/%D8%B4%D8%B1%D9%83%D8%A9-%D8%AA%D8%BA%D9%84%D9%8A%D9%81-%D8%A7%D9%84%D8%B9%D9%81%D8%B4-%D8%A8%D8%A7%D8%A8%D9%87%D8%A7.html
https://www.atar-almadinah.com/%D8%B4%D8%B1%D9%83%D8%A9-%D8%AA%D8%BA%D9%84%D9%8A%D9%81-%D8%A7%D8%AB%D8%A7%D8%AB-%D8%A8%D8%A7%D9%84%D8%B1%D9%8A%D8%A7%D8%B6.html
https://www.atar-almadinah.com/%D8%B4%D8%B1%D9%83%D8%A9-%D8%A7%D9%84%D8%B5%D9%81%D8%B1%D8%A7%D8%AA-%D9%84%D9%86%D9%82%D9%84-%D8%A7%D9%84%D8%B9%D9%81%D8%B4-%D8%A8%D8%A7%D9%84%D8%B1%D9%8A%D8%A7%D8%B6.html
https://www.atar-almadinah.com/%D8%B4%D8%B1%D9%83%D8%A9-%D9%86%D9%82%D9%84-%D8%B9%D9%81%D8%B4-%D8%A8%D8%A7%D8%AD%D8%AF-%D8%B1%D9%81%D9%8A%D8%AF%D8%A9.html
https://www.atar-almadinah.com/%D8%A7%D8%B1%D8%AE%D8%B5-%D8%B4%D8%B1%D9%83%D8%A7%D8%AA-%D9%86%D9%82%D9%84-%D8%B9%D9%81%D8%B4-%D8%A8%D9%8A%D9%86-%D8%A7%D9%84%D9%85%D8%AF%D9%86.html
شركة مكافحة حشرات بالجبيل وكذلك شركة كشف تسربات المياه بالجبيل وتنظيف خزانات وتنظيف الموكيت والسجاد والكنب والشقق والمنازل بالجبيل وتنظيف الخزانات بالجبيل وتنظيف المساجد بالجبيل شركة تنظيف بالجبيل تنظيف المسابح بالجبيل
https://jumperads.com/jubail/anti-insects-company-jubail.html شركة مكافحة حشرات بالجبيل
https://jumperads.com/jubail/water-leaks-detection-company-jubail.html شركة كشف تسربات بالجبيل
https://jumperads.com/jubail/jubail-company-surfaces.html شركة عزل اسطح بالجبيل
https://jumperads.com/jubail/jubail-company-sewage.html شركة تسليك مجاري بالجبيل
https://jumperads.com/jubail/jubail-cleaning-company-sofa.html شركة تنظيف كنب بالجبيل
https://jumperads.com/jubail/jubail-cleaning-company-mosques.html شركة تنظيف مساجد بالجبيل
https://jumperads.com/jubail/jubail-cleaning-company-Carpet.html شركة تنظيف سجاد بالجبيل
https://jumperads.com/jubail/jubail-cleaning-company-tanks.html شركة تنظيف خزانات بالجبيل
https://jumperads.com/jubail/jubail-cleaning-company-swimming-bath.html شركة تنظيف وصيانة مسابح بالجبيل
https://jumperads.com/jubail/jubail-cleaning-company-Furniture.html شركة تنظيف الاثاث بالجبيل
https://jumperads.com/jubail/jubail-cleaning-company-home.html شركة تنظيف شقق بالجبيل
https://jumperads.com/jubail/jubail-cleaning-company-Carpets.html شركة تنظيف موكيت بالجبيل
https://jumperads.com/jubail/jubail-cleaning-company.html شركة تنظيف مجالس بالجبيل
https://jumperads.com/jubail/jubail-cleaning-company-house.html شركة تنظيف منازل بالجبيل
https://jumperads.com/jubail/jubail-cleaning-company-curtains.html شركة تنظيف ستائر بالجبيل
https://jumperads.com/jubail/jubail-cleaning-company-Villas.html شركة تنظيف فلل بالجبيل
https://jumperads.com/jubail/jubail-company-tile.html شركة جلي بلاط بالجبيل
شركة سكاي لخدمات نقل العفش والاثاث بالمنطقة العربية السعودية نحن نوفر خدمات نقل اثاث بالرياض ونقل عفش بالمدينة المنورة ونقل عفش بمكة ونقل عفش بالطائف نحن نقدم افضل نقل اثاث بخميس مشيط ونقل عفش بجدة
https://treeads.net/ شركة سكاي نقل العفش
https://treeads.net/blog.html مدونة لنقل العفش
https://treeads.net/movers-mecca.html شركة نقل عفش بمكة
https://treeads.net/movers-riyadh-company.html شركة نقل عفش بالرياض
https://treeads.net/all-movers-madina.html شركة نقل عفش بالمدينة المنورة
https://treeads.net/movers-jeddah-company.html شركة نقل عفش بجدة
https://treeads.net/movers-taif.html شركة نقل عفش بالطائف
https://treeads.net/movers-dammam-company.html شركة نقل عفش بالدمام
https://treeads.net/movers-qatif.html شركة نقل عفش بالقطيف
https://treeads.net/movers-jubail.html شركة نقل عفش بالجبيل
https://treeads.net/movers-khobar.html شركة نقل عفش بالخبر
https://treeads.net/movers-ahsa.html شركة نقل عفش بالاحساء
https://treeads.net/movers-kharj.html شركة نقل عفش بالخرج
https://treeads.net/movers-khamis-mushait.html شركة نقل عفش بخميس مشيط
https://treeads.net/movers-abha.html شركة نقل عفش بابها
https://mycanadafitness.com/movingfurniturenajran.html شركة نقل اثاث بنجران
https://mycanadafitness.com/movingfurniturejazan.html شركة نقل اثاث بجازان
https://mycanadafitness.com/movingfurnitureasir.html شركة نقل اثاث بعسير
https://mycanadafitness.com/movingfurniturehail.html شركة نقل اثاث بحائل
https://mycanadafitness.com/movingfurnitureqassim.html شركة نقل عفش بالقصيم
https://mycanadafitness.com/movingfurnitureyanbu.html شركة نقل اثاث بينبع
https://mycanadafitness.com/movingfurnitureburaidah.html شركة نقل عفش ببريدة
https://mycanadafitness.com/movingfurniturehafralbatin.html شركة نقل عفش بحفر الباطن
https://mycanadafitness.com/movingfurniturerabigh.html شركة نقل عفش برابغ
https://mycanadafitness.com/movingfurnituretabuk.html شركة نقل عفش بتبوك
https://mycanadafitness.com/movingfurnitureasfan.html شركة نقل عفش بعسفان
https://mycanadafitness.com/movingfurnituresharora.html شركة نقل عفش بشرورة
https://mycanadafitness.com/companis-moving-riyadh.html شركات نقل العفش بالرياض
https://mycanadafitness.com/cars-moving-riyadh.html سيارات نقل العفش بالرياض
https://mycanadafitness.com/company-number-moving-riyadh.html ارقام شركات نقل العفش بالرياض