Staying away from home with late stage MND is an absolute mission. Specialist accommodation is massively rare so I stopped looking for accommodation that has everything I need a long time ago. Instead I find places that have enough space and hire or travel with all my equipment. To give you an idea my packing list for this trip had 76 items on it...
Of course I can't physically help to pack any of that, and trying to control too much of the process is a very fast path to massive frustration. However its not easy to let go when so much of that equipment is essential to keeping me alive and cared for, I need to have a lot of trust in my care team and thankfully I do.
Then of course there are the people who will physically push me around the London Marathon. Taking responsibility for my care at the same time. Not only do they have to be physically fit enough to comfortably run 26.2 miles, they have to monitor me and provide any interventions I may need. Distance running is traditionally a solo pursuit, taking on responsibility for me as well is a heroic effort in my view.
Then there are the people who organise the administrative side, the logistics and the publicity. Making sure all my equipment is where it needs to be, everyone has their accreditation, and that we raise some cash for research and care too.
In total that covers around 12 people. The vast majority of whom are unpaid. Those who are paid receive a fraction of what they deserve (that's a whole other blog post) and go above and beyond to help me a
ttempt these ridiculous challenges. Those 12 people are just the tip of the iceberg, my family, friends, trustees and of course all the amazing people who follow and support the charity all have my heartfelt gratitude. I don't really know how I've created this incredible support, or why so many people are willing to give up their time and energy to support me and the charity. It's beyond anything I hoped for or anticipated when we started Stand Against MND and I'm humbled by it.
It gives me the will to carry on, a purpose. Helps me maintain a positive attitude whilst being assaulted by the most brutal disease. Thank you. Every single one of you.
If you feel inspired to help us fund more vital research, you can donate here.
Thank you so much for reading.
Sam x
3375 comments
Dr Harrison Can cure HIV/AIDS,Herpes,HPV,Diabetes,Fibroid,Cancer and many other Virus and Diseases.He cured me of Herpes virus and HPV that has been in my system for Five years plus!I am 100% Positive, there is nothing relating to Spiritual matter, Problems,Sicknesses and Diseases he wouldn’t have a solution too..He would be able to do the same with his Spell Powers and solve your Problems!
Whats app No/Call +234 8188 076272He also Helped my younger sister conceive and had a son after 5 years of marriage.
He’s really a great man.
Contact him on his
EMAIL:~ J.HARRISONSPELLHOMES@GMAIL.COM
WEBSITE- https://drharrisonspellhomes.weebly.com/.
My story changed when I met Chief Ade through Elizabeth Traffords post on how she won the lottery with the help of Chief Ade. Spell is still very effective, I was convinced after using the numbers provided by Chief Ade when I told him I wanted to win the lottery because of the post I saw online about his winning numbers, he said he has helped a lot of people and I won’t be an exception to that, he put in work for me after I provided the necessary Informations he requested from me, after then he gave me the numbers to play after 24hours and directed me on how to play and when I should play them which I did, I won £5.2 million pounds, I’m excited that my dream has come through, Dr Ade is the best when it comes to winning the lottery with spell and prayers Email: chiefadespellhome@gmail.com WhatsApp +234 901 380 6328 thank you .
I lost my marriage after 2 years and it was a horrible experience for me. My wife left me and my son and everything happened beyond my control and I never knew few people around me engineered my wife and turned her against me just because I choose to build my family and focus more on it. I had to seek help because I know I did not do anything to have my marriage crashed. Dr Isikolo helped me and a lot was revealed to me on what transpired. He cast a love reunion spell that bonded my wife and I back together and the whole evil my family did against me was revealed. Am thankful that my home is back more happier than ever and all the appreciation goes to Dr Isikolo as he indeed fixed my problems just after 48 hours. official website: https://isikolo-temple.com or text him on WhatsApp via +2348133261196
Good day viewers, I wish to share my testimony with all of you. I have daily 9 to 5 jobs but while I work, I try my luck at playing instant Lotto. On this particular day, I decided to seek help online regarding tips for winning the lottery, and I saw many individuals testifying about Meduza spells. I reached out to him and informed him that I needed help to win the lottery, and he clarified the process to me, stating that after he casts the spell, it will take 48 hours for him to provide me the winning numbers, which I accepted. I followed all his instructions, and he provided me with the numbers to enter the Lottery. After the draw the following morning, I received a notification on the Lottery app on my phone indicating that I was the lucky winner of $273 million on the New Jersey Lottery and I’m here to extend my heartfelt gratitude to Meduza. If you seek for assistance in any aspect of your life, WhatsApp Lord Meduza via: +1 (807) 907-2687 or Email: lordmeduzatemple@hotmail.com
Good day viewers, I wish to share my testimony with all of you. I have daily 9 to 5 jobs but while I work, I try my luck at playing instant Lotto. On this particular day, I decided to seek help online regarding tips for winning the lottery, and I saw many individuals testifying about Meduza spells. I reached out to him and informed him that I needed help to win the lottery, and he clarified the process to me, stating that after he casts the spell, it will take 48 hours for him to provide me the winning numbers, which I accepted. I followed all his instructions, and he provided me with the numbers to enter the Lottery. After the draw the following morning, I received a notification on the Lottery app on my phone indicating that I was the lucky winner of $273 million on the New Jersey Lottery and I’m here to extend my heartfelt gratitude to Meduza. If you seek for assistance in any aspect of your life, WhatsApp Lord Meduza via: +1 (807) 907-2687 or Email: lordmeduzatemple@hotmail.com