Staying away from home with late stage MND is an absolute mission. Specialist accommodation is massively rare so I stopped looking for accommodation that has everything I need a long time ago. Instead I find places that have enough space and hire or travel with all my equipment. To give you an idea my packing list for this trip had 76 items on it...
Of course I can't physically help to pack any of that, and trying to control too much of the process is a very fast path to massive frustration. However its not easy to let go when so much of that equipment is essential to keeping me alive and cared for, I need to have a lot of trust in my care team and thankfully I do.
Then of course there are the people who will physically push me around the London Marathon. Taking responsibility for my care at the same time. Not only do they have to be physically fit enough to comfortably run 26.2 miles, they have to monitor me and provide any interventions I may need. Distance running is traditionally a solo pursuit, taking on responsibility for me as well is a heroic effort in my view.
Then there are the people who organise the administrative side, the logistics and the publicity. Making sure all my equipment is where it needs to be, everyone has their accreditation, and that we raise some cash for research and care too.
In total that covers around 12 people. The vast majority of whom are unpaid. Those who are paid receive a fraction of what they deserve (that's a whole other blog post) and go above and beyond to help me a
ttempt these ridiculous challenges. Those 12 people are just the tip of the iceberg, my family, friends, trustees and of course all the amazing people who follow and support the charity all have my heartfelt gratitude. I don't really know how I've created this incredible support, or why so many people are willing to give up their time and energy to support me and the charity. It's beyond anything I hoped for or anticipated when we started Stand Against MND and I'm humbled by it.
It gives me the will to carry on, a purpose. Helps me maintain a positive attitude whilst being assaulted by the most brutal disease. Thank you. Every single one of you.
If you feel inspired to help us fund more vital research, you can donate here.
Thank you so much for reading.
Sam x
3092 comments
Break Up Spell Caster Call ☎ +27765274256 End Their Relationship, Break Up Toxic Marriage in Europe
Are you in a relationship that there is no peace,but total conflict and you have done all you can to make sure peace is restored in your home and still yet nothing has changed,worry no more by contacting me while I restored back peace into that home of yours,while the love between you both increases,this works in just in the next 48 hours and also 100 percent guaranteed when is done👨❤️👨💍❤️
#love #lovespells #lovespellcaster #spells #spellcaster #obsession #psychic #reconciliation #reconciliationspell #reunion #reunionspell #castingspells #lovemagic #reunion #reunite #return #retrieve #traditionalhealer #blackmagic #divorce #exwife #exhusband #exback #fertility #pregnancy #babyspells #breakup #break #toxic
Contact Sheikh Hussein
Call now for more information
WhatsApp/Telegram/Botim/Viber: ☎ +27765274256
E-Mail: sheikhhussein@protonmail.com
Visit: https://www.sheikhhussein.com
Marriage Propasal Spell Caster Call ☎ +27765274256 Spell To Make Them Accept Your Proposal Instantly
Are you planning on proposing to him/her and the last time you did this it didn’t end well,and you still love him/her and want them to be yours no matter what,worry no more by contacting me while I cast a spell that we make them accept your proposal immediately you asked them,this works fast and stay permanently when is done,even as years goes by between you both💍👨❤️👨❤️
#love #lovespells #lovespellcaster #spells #spellcaster #obsession #psychic #reconciliation #reconciliationspell #reunion #reunionspell #castingspells #lovemagic #reunion #reunite #return #retrieve #marriage #traditionalhealer #blackmagic #divorce #exwife #exhusband #exback #fertility #pregnancy #babyspells #breakup #break #toxic
Hi guys, my name is Sarah Flower, I ended my marriage in 2024 due to suffering from domestic abuse at the hands of my husband. Currently, he is trying to reconcile with me after finding out that I won a Jackpot Lottery Prize of $96 million. Fortunately, I received assistance online from Lord Meduza, the great spell caster who has successfully aided many individuals worldwide in winning the lottery. I reached out to him about my circumstances and expressed my desire to win the lottery. After casting the spell, he provided me with the exact numbers to play. Now, my husband wants me back, fully aware of my $96 million lottery win, but I told him no; I will not return to him. I am incredibly grateful to Lord Meduza, and if you find yourself facing a tough situation, I recommend that you reach out to him as he’s the best in his field. You can contact Lord Meduza via Email: lordmeduzatemple@hotmail.com or WhatsApp: +1 807 907 2687.
Good luck to you all.
RECOVER YOUR LOST CRYPTO ASSETS WITH CNC INTELLIGENCE. NO UPFRONT PAYMENT REQUIRED.
CNC Intelligence is a team of Cyber Intelligence, Crypto Investigation, Asset Tracing and Offshore Legal experts. Working together to form a boutique cyber and crypto intelligence group focused on providing results.
Using the latest Cyber Tools, Open Source Intelligence (OSINT), Human Intelligence (HUMINT), and cutting edge technology, we provide actionable intelligence to our clients.
WHY CHOOSE CNC INTELLIGENCE?
- Expert Cyber Investigation Services —Our cyber investigators are certified in the US, UK and experienced with investigations spanning 6 continents.
- Cryptocurrency And Digital Asset Tracking -- We are able to track the movement of several different cryptocurrencies and assets. If the cryptocurrency has been moved, we are able to follow it.
- Strategic Intelligence For Asset Recovery - The first step to recovery is locating recoverable assets. Our experienced team will be able to walk you through the process.
Schedule a mail session with our team of professionals today via – cncintel247 (@) gmail (.) com to get started immediately.
BEWARE of FABRICATED reviews and testimonies endorsing fraudsters, do not get scammed twice.
Disclaimer: CNC Intelligence is not a law enforcement agency and not a law firm. Like all investigators, we cannot guarantee specific results, but we apply our expertise and resources to every case professionally and ethically.y
Hi guys, my name is Sarah Flower, I ended my marriage in 2024 due to suffering from domestic abuse at the hands of my husband. Currently, he is trying to reconcile with me after finding out that I won a Jackpot Lottery Prize of $96 million. Fortunately, I received assistance online from Lord Meduza, the great spell caster who has successfully aided many individuals worldwide in winning the lottery. I reached out to him about my circumstances and expressed my desire to win the lottery. After casting the spell, he provided me with the exact numbers to play. Now, my husband wants me back, fully aware of my $96 million lottery win, but I told him no; I will not return to him. I am incredibly grateful to Lord Meduza, and if you find yourself facing a tough situation, I recommend that you reach out to him as he’s the best in his field. You can contact Lord Meduza via Email: lordmeduzatemple@hotmail.com or WhatsApp: +1 807 907 2687.
Good luck to you all.