Staying away from home with late stage MND is an absolute mission. Specialist accommodation is massively rare so I stopped looking for accommodation that has everything I need a long time ago. Instead I find places that have enough space and hire or travel with all my equipment. To give you an idea my packing list for this trip had 76 items on it...
Of course I can't physically help to pack any of that, and trying to control too much of the process is a very fast path to massive frustration. However its not easy to let go when so much of that equipment is essential to keeping me alive and cared for, I need to have a lot of trust in my care team and thankfully I do.
Then of course there are the people who will physically push me around the London Marathon. Taking responsibility for my care at the same time. Not only do they have to be physically fit enough to comfortably run 26.2 miles, they have to monitor me and provide any interventions I may need. Distance running is traditionally a solo pursuit, taking on responsibility for me as well is a heroic effort in my view.
Then there are the people who organise the administrative side, the logistics and the publicity. Making sure all my equipment is where it needs to be, everyone has their accreditation, and that we raise some cash for research and care too.
In total that covers around 12 people. The vast majority of whom are unpaid. Those who are paid receive a fraction of what they deserve (that's a whole other blog post) and go above and beyond to help me a
ttempt these ridiculous challenges. Those 12 people are just the tip of the iceberg, my family, friends, trustees and of course all the amazing people who follow and support the charity all have my heartfelt gratitude. I don't really know how I've created this incredible support, or why so many people are willing to give up their time and energy to support me and the charity. It's beyond anything I hoped for or anticipated when we started Stand Against MND and I'm humbled by it.
It gives me the will to carry on, a purpose. Helps me maintain a positive attitude whilst being assaulted by the most brutal disease. Thank you. Every single one of you.
If you feel inspired to help us fund more vital research, you can donate here.
Thank you so much for reading.
Sam x
3080 comments
Hire Bitcoin Recovery Expert | Best Cryptocurrency Recovery Company | Captain WebGenesis
Thanks to CAPTAIN WEBGENESIS I was able to get back my stolen Bitcoin.
In an unfortunate turn of events, I invested $387,000 into a scheme facilitated by a fraudulent website that ultimately proved to be a scam. Initially presenting itself as a legitimate investment opportunity, the platform employed sophisticated tactics to gain my trust, including seemingly verifiable testimonials and convincing user interfaces. Immediately I discovered I had been scammed, an unsettling realization swept over me, compelling me to seek assistance from trusted sources. In my quest for resolution, I encountered Captain WebGenesis, a seasoned expert in cybersecurity and Crypto recovery solutions. I wholeheartedly appreciate the dedication exhibited by Captain WebGenesis and would like to express my sincere gratitude for his invaluable intervention and assistance in the recovery of my scammed funds.
Website; captainwebgenesis.com
Hire Bitcoin Recovery Expert | Best Cryptocurrency Recovery Company | Captain WebGenesis
Thanks to CAPTAIN WEBGENESIS I was able to get back my stolen Bitcoin.
In an unfortunate turn of events, I invested $387,000 into a scheme facilitated by a fraudulent website that ultimately proved to be a scam. Initially presenting itself as a legitimate investment opportunity, the platform employed sophisticated tactics to gain my trust, including seemingly verifiable testimonials and convincing user interfaces. Immediately I discovered I had been scammed, an unsettling realization swept over me, compelling me to seek assistance from trusted sources. In my quest for resolution, I encountered Captain WebGenesis, a seasoned expert in cybersecurity and Crypto recovery solutions. I wholeheartedly appreciate the dedication exhibited by Captain WebGenesis and would like to express my sincere gratitude for his invaluable intervention and assistance in the recovery of my scammed funds.
Website; captainwebgenesis.com
Hire Bitcoin Recovery Expert | Best Cryptocurrency Recovery Company | Captain WebGenesis
Thanks to CAPTAIN WEBGENESIS I was able to get back my stolen Bitcoin.
In an unfortunate turn of events, I invested $387,000 into a scheme facilitated by a fraudulent website that ultimately proved to be a scam. Initially presenting itself as a legitimate investment opportunity, the platform employed sophisticated tactics to gain my trust, including seemingly verifiable testimonials and convincing user interfaces. Immediately I discovered I had been scammed, an unsettling realization swept over me, compelling me to seek assistance from trusted sources. In my quest for resolution, I encountered Captain WebGenesis, a seasoned expert in cybersecurity and Crypto recovery solutions. I wholeheartedly appreciate the dedication exhibited by Captain WebGenesis and would like to express my sincere gratitude for his invaluable intervention and assistance in the recovery of my scammed funds.
Website; captainwebgenesis.com
Hire Bitcoin Recovery Expert | Best Cryptocurrency Recovery Company | Captain WebGenesis
Thanks to CAPTAIN WEBGENESIS I was able to get back my stolen Bitcoin.
In an unfortunate turn of events, I invested $387,000 into a scheme facilitated by a fraudulent website that ultimately proved to be a scam. Initially presenting itself as a legitimate investment opportunity, the platform employed sophisticated tactics to gain my trust, including seemingly verifiable testimonials and convincing user interfaces. Immediately I discovered I had been scammed, an unsettling realization swept over me, compelling me to seek assistance from trusted sources. In my quest for resolution, I encountered Captain WebGenesis, a seasoned expert in cybersecurity and Crypto recovery solutions. I wholeheartedly appreciate the dedication exhibited by Captain WebGenesis and would like to express my sincere gratitude for his invaluable intervention and assistance in the recovery of my scammed funds.
Website; captainwebgenesis.com
Hire Bitcoin Recovery Expert | Best Cryptocurrency Recovery Company | Captain WebGenesis
Thanks to CAPTAIN WEBGENESIS I was able to get back my stolen Bitcoin.
In an unfortunate turn of events, I invested $387,000 into a scheme facilitated by a fraudulent website that ultimately proved to be a scam. Initially presenting itself as a legitimate investment opportunity, the platform employed sophisticated tactics to gain my trust, including seemingly verifiable testimonials and convincing user interfaces. Immediately I discovered I had been scammed, an unsettling realization swept over me, compelling me to seek assistance from trusted sources. In my quest for resolution, I encountered Captain WebGenesis, a seasoned expert in cybersecurity and Crypto recovery solutions. I wholeheartedly appreciate the dedication exhibited by Captain WebGenesis and would like to express my sincere gratitude for his invaluable intervention and assistance in the recovery of my scammed funds.
Website; captainwebgenesis.com
Hire Bitcoin Recovery Expert | Best Cryptocurrency Recovery Company | Captain WebGenesis
Thanks to CAPTAIN WEBGENESIS I was able to get back my stolen Bitcoin.
In an unfortunate turn of events, I invested $387,000 into a scheme facilitated by a fraudulent website that ultimately proved to be a scam. Initially presenting itself as a legitimate investment opportunity, the platform employed sophisticated tactics to gain my trust, including seemingly verifiable testimonials and convincing user interfaces. Immediately I discovered I had been scammed, an unsettling realization swept over me, compelling me to seek assistance from trusted sources. In my quest for resolution, I encountered Captain WebGenesis, a seasoned expert in cybersecurity and Crypto recovery solutions. I wholeheartedly appreciate the dedication exhibited by Captain WebGenesis and would like to express my sincere gratitude for his invaluable intervention and assistance in the recovery of my scammed funds.
Website; captainwebgenesis.com
Hire Bitcoin Recovery Expert | Best Cryptocurrency Recovery Company | Captain WebGenesis
Thanks to CAPTAIN WEBGENESIS I was able to get back my stolen Bitcoin.
In an unfortunate turn of events, I invested $387,000 into a scheme facilitated by a fraudulent website that ultimately proved to be a scam. Initially presenting itself as a legitimate investment opportunity, the platform employed sophisticated tactics to gain my trust, including seemingly verifiable testimonials and convincing user interfaces. Immediately I discovered I had been scammed, an unsettling realization swept over me, compelling me to seek assistance from trusted sources. In my quest for resolution, I encountered Captain WebGenesis, a seasoned expert in cybersecurity and Crypto recovery solutions. I wholeheartedly appreciate the dedication exhibited by Captain WebGenesis and would like to express my sincere gratitude for his invaluable intervention and assistance in the recovery of my scammed funds.
Website; captainwebgenesis.com
Your eyes can’t be everywhere every time, you will need the help of some special set of people to look into places which you can’t and one of those people is premiumhackservices@gmail.com who can help you look into anything in the digital world and get anything you want, you can get through to them on Whatsapp: +14106350697, I don’t want to spill the beans but you know what I’m talking about so go get it, it’s at arm’s reach.
WIZARD JAMES RECOVERY: Computer Experts Prepared to Retrieve Stolen Money, Bitcoin, and USDT. After my USDT and Bitcoin were taken, I was in a desperate search for a solution. At that time, I came onto Wizard James Recovery, a group of cyber wizards with the know-how and resources required to retrieve stolen money. When it came to locating and retrieving my stolen assets, the Wizard James Recovery crew showed remarkable proficiency. They recovered my stolen Bitcoin and USDT and swiftly identified the criminals thanks to their sophisticated cyber tactics and in-depth knowledge of blockchain technology. They kept lines of communication open and made sure I was updated at every stage of the recovery process. Their dedication to getting my money back was very outstanding. Wizard James Recovery is a great option if you’re in a similar circumstance. They can assist you in recovering your stolen valuables and have unparalleled cyber experience. Contact them via email at Wizardjamesrecovery [@] usa [.] com. They are the go-to experts for recovering lost or stolen cryptocurrency.